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Post by worriedwife on Nov 3, 2009 16:26:39 GMT -6
Out of curiosity - can anyone tell me how often they are being monitored with MRI's? My husband had his surgery surgery in April 07 - with another in 8/08. He is now on a 4 month monitoring with full mri's of the entire spine - with and without contrast.....it seems very frequent....there is no tumor regrowth inside the spine.....some issues elsewhere....but it almost seems excessive at 4months - not sure if I should be happy at the pro activeness of the doctors or nervous at what they are looking for or expecting to find.....Your thoughts? ?
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Post by tc on Nov 4, 2009 7:48:45 GMT -6
I haven't had surgery yet, but I get MRIs with and without contrast every 6 months. I probably could go longer inbetween, but anxiety gets to me when I don't know what is going on and my symptoms change slightly all the time. Regarding your husband, I would ask the doctors if there is some reason why they want him to have MRIs so frequently. Every 4 months does seem excessive, unless there is a particular reason for it. The MRIs don't hurt you, but the contrast isn't that great for you if it isn't really necessary.
Hey, you post-surgery people out there - Please answer her question: "How often do you get MRIs?"
Teresa
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Post by abprops on Nov 7, 2009 17:41:32 GMT -6
Hi
I had my first MRI in Nov 2008 second in June 2009 and hope to have a third in Dec 2009. I was told I would have 6 monthly MRI scans for the foreseeable future.
I understand that 3 monthly MRI scans after surgery is the norm for the first 1 to 2 years. Personally I would be happy to have 3 monthly MRI scans for that period and cut down if there are no problems.
I had one tumour removed from my thoracic spine in June 2009 and was informed that there is another in my lumbar spine in March 2009. My worry is the opposite to yours as I would like to know what is happening and would welcome 3 monthly MRI scans.
I hope your husband is OK. Why don't you post on the General forum and ask questions there? You would be welcome.
Morris
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Post by stargirl65 on Mar 13, 2010 20:27:15 GMT -6
We got every 3 months for a year then every 6 months. Then the tumor grew and now back to every 3 months after chemo.
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Post by Liz on Apr 2, 2010 14:07:24 GMT -6
My husband had his surgery April 3, 2009. Diagnosis was an oligoastrocytoma in his cervical spine. terminal. They did MRI's every 3 months. The tumor inside the cord shrunk but the last MRI revealed a mass on the outside of the cord and another in the T spine. My opinion may be biased but I do not or did not find every 3 months to be excessive and wonder if we had done one earlier if it would have been there or if we had waited if the new masses would be worse.
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Post by chefpattyo on Jun 22, 2011 15:58:50 GMT -6
If there is no regrowth of tumor ,I dont understand why you should be getting MRI scans any sooner than 1 x per year.What did you mean by some issues elsewhere ? Would that have to due with getting more MRI'S? You should ask why and what they are looking for.I still have my tumor and have mine done yearly unless I feel a significant change.
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Post by vtgirlinfl on Jun 30, 2011 12:53:24 GMT -6
I had surgery for a menangioma in 11/09/10. I had my 1st post op MRI in Feb. and another in May. So about every 3 months. Now they said I can go yearly if the pain subsides soon (which it has not )
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Post by chefpattyo on Jul 22, 2011 0:37:32 GMT -6
I have an ependymoma c1-c5 and get my scans yearly.They started off every 3 mo after my biopsy then went to 6 mo then to every year.What type of tumor does he have?Maybe that has something to do with the 3 mo watching cycle?
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Post by Pierrette on Nov 26, 2012 9:41:37 GMT -6
TC- how long have you had your tumor? I was diagnosed in 2009 with a tumor at T11, T12. I opted after reading all the surgery reports not to have surgery but to live with the consequences as it seems the resection outcome is dramatic. I have had no growth since 2009 but my right leg is numb and I get minor burning sensation at the sight. It is the mental game that is very hard to live with
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Post by lw on Nov 27, 2012 12:17:24 GMT -6
I am just approaching the 4 year post surgery mark and I am now having scans every 12 months. I don't know whether this is standard procedure or whether they just 'play by ear' and decide on a case by case basis. My first two scans both indicated that my tumour had grown but this wasn't so with the most recent - it showed no growth at all. Does anybody know if these tumours can ever stop growing entirely? Or is gradual re-growth an inevitability?
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