|
|
Post by betty on Dec 16, 2008 11:04:28 GMT -6
Hello,
My name is Betty. I just found this site. On Dec 4th I had a meningioma laminectomy with resection at T1/C7 . The tumor was in the spinal cord and thank God was benign. I have been home a week. I have lots of pain and muscle spasms that the vicadin and flexoril don't seem to be helping that much. Just had stitches out yesterday. Mouth is so dry and also have some rash I am getting checked out today.
I had the best spinal cord surgeon, Dr Mkrdichian from CINN
(Chicago Ins for Nerusurgery).
There is so little on the web about these rare tumors. I hope to make friends here.
|
|
|
|
Post by betty on Dec 16, 2008 11:08:48 GMT -6
Betty here again from Chicago.
I forgot to mention that the meningioma calcified to the dura. I just noticed that info on Renee's post.
|
|
|
|
Post by tc on Dec 16, 2008 11:59:15 GMT -6
Dear Betty,
Hi and welcome to the group. I'm so glad you found us. This group has helped me a lot. So sorry that you needed us though. I'd love to hear more about you and your tumor story. This is a great place to ask questions (such as other prescriptions to try to help with the pain). I suggest that you post your comments and questions to the general forum, because not that many people will see the "meningioma" thread. I look forward to getting to know you better. Glad you found us. Best wishes for a good recovery!
Teresa
|
|
|
|
Post by betty on Dec 16, 2008 12:56:33 GMT -6
Hi Theresa,
I am still trying to figure out how to post and all.
Thanks for the welcome!!
|
|
|
|
Post by reneemoss on Dec 17, 2008 20:47:46 GMT -6
Hi Betty - Glad you found this message board -
Some days I need it to keep me 'sane' .......
I will look for you on the 'main board' -
You will find many wonderful helpful friends and it will be a comfort to you.
I have been through a multitude of pain meds - you are so new to this, you will find your own way best for your special needs.
At the very beginning I found Cymbalta (anti-depression) helpful -
I'm OK without it now............
Happy Holidays..........keep your spirits up!
Renee
|
|
|
|
Post by jcat21 on Apr 2, 2011 22:05:39 GMT -6
Hi Betty, I was recently diaganosed with a Meningioma at T3 and my surgery is scheduled for this upcoming week. I am lucky that the tumor was discovered early before any serious damage was done. I was experiencing painful muscle spasms in my chest and back and my doctor had the good sense to order a MRI. I am very scared about the aftermath and what might happen. Aany advise or information would be greatly appreciated. Thank you Jaime
|
|
|
|
Post by vtgirlinfl on Jun 22, 2011 12:54:49 GMT -6
Hello all. I had a meningioma removed on Nov. 9, 2010 it was huge and encompassed the T2&T3 area. My neurosurgeon said it was a miracle I could walk at all prior to surgery and was amazed that I walked into the office. Granted I used a cane and my husband as support. I had a laminectomy of the T3&T4 area at the same time. It go rid of the pain from the CSF build up that was in my legs but I have had pain in my back and headaches ever sense. I have had 2 MRI's done post surgical and they have found 2 more tumors plus a cyst in my T 4 vertebre protruding into my boney part of my spine (I can't think of the part right now). Anyway I just wanted to say hello and let you all know although rare you are not alone. I am 32 yrs old and had surgery at UF SHANDS in Gainesville, FL.
|
|
|
|
Post by mahea092201 on Feb 19, 2012 13:50:41 GMT -6
I have been diagnosed with a T8 meningioma. I lately have been having extreme pain at night from my tumor on the left hand side of my back that radiates to my ribcage. I am just wondering should i do the surgery to remove the tumor. I am a mother of 6 my youngest is 2 months old. Just wondering for those who have done a surgery what was the outcome post surgery and do they have any regrets doing the surgery and would have preferred to have waited if given the choice. I am not sure if I should do the surgery. I sometimes have pins and needles running down my left leg and tingling in my left foot that comes and goes, i have slight temperature deficit in my left leg as well. any comment or help would be great.
thank you,
Ramona
|
|
|
|
Post by Lady of Faith on Feb 23, 2012 7:40:26 GMT -6
Ramona,
Try posting in the general forum. Most everyone talks there regardless of their tumor type. You will find people who have had their surgery and others who are on the wait and see path.
I am sorry you are having to go through this but glad you found us. Know that you are among friends who understand what you are going through.
Yolanda
|
|
|
|
Post by logikate on Aug 30, 2012 0:49:05 GMT -6
It looks like I am joining a strong group here. I am gearing up for surgery of a C7 tumor the first week of August ... I still haven't commited to a surgeon ... two significantly different viewpoints. I am a dental hygienist and reading your posts I am realizing that I may be at a career crossroad. Sigh.
|
|
