cyrola
Junior Member
Posts: 11 
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Post by cyrola on May 9, 2014 4:37:18 GMT -6
Trying to be positive here, but feeling pretty blue. It all seems so fing hard. I used to run through walls and now I shuffle along dragging my foot. Yesterday I was apologizing to some punks when 6 months ago I would have cracked some heads or at least known I could have and just brushed them aside.
I rage so much between anger and saddness. It is all so UN fair. I wasn't made for this. I should be shinning not shuffling.
I know that peace and calmness is the way but just now I would like to go out in one last crazy adventure. Shackleton where are you now? Captain Slokum let's sail away. Tai Chi man calm my soul.
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jennn
Junior Member
Posts: 17 
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Post by jennn on May 9, 2014 14:24:29 GMT -6
I completely agree...I'm at the same point. I'm 35 years old and just diagnosed Monday. I am a single mother and trying to be strong...its just hard.
Sent from my XT1080 using Tapatalk
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Post by leks on May 10, 2014 4:54:42 GMT -6
I spent many a nights crying in the month between diagnosis and surgery. Heck I've spent many days crying in the last few months, what does help is learning to accept this new me, and my mirtazapine helps too and counselling.
Keep the faith ppl!!
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Post by funnywalk on Jun 10, 2014 6:30:57 GMT -6
Your rage and frustration is shared by me and many here. After two years I have got more philosophical, but partly that's my age [66]. If I was young and a parent of young children, I cannot imagine how difficult this is for you. Cyrola, is there any kind of extreme sport you could still do, maybe climbing roped up with a leader? It sounds as if you have the will to do crazy stuff - can you drive an automatic car? Go and find an old arifield and burn rubber for a while. Try and get yourself into exciting yet not life threatening situations - flight simulators? Maybe even real flying lessons? Let us know how you get on. FW
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Post by littlesister on Jun 10, 2014 10:07:24 GMT -6
I think most of us went through the stages of anger and fear. I am so sorry you have to go through this... all of you. This place helps because at least you know that there are people who really KNOW what you are going through. I'm 4 years post op this coming November. I have good days and bad days. Counseling helps as does a supportive partner. Give your self time to heal and lean on those here when you need to vent. (((gentle hugs)))
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Post by pringleman on Jun 16, 2014 3:58:42 GMT -6
Great Advice, Little Sister,
I like the avatar too. Is that you singing 'The Ependymoma Blues' in Bflat minor? Or is it more a punk rock tune?
PG
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Post by littlesister on Apr 23, 2015 14:38:19 GMT -6
Yup me. More blues for sure!
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Post by steve69876 on Mar 7, 2016 11:48:36 GMT -6
Can i just ask how you are now i found out that i have a tumor at the l2 of my spine 3 months ago i am there tomorrow to find out what the plan of action is with my ns, its a little different here in the uk with the nhs, i received a letter which was intended for my spinal surgeon from october when they give me operations thinking it was my discs giving me symptoms, which said it was a tumour on my l2 vertebrae i have been for another mri last week to check on growing rate, ive heard nothing at all other than that in 3 months, and even though im scared to death regarding tomorrow i just cant wait until i find out something,
I just want to know have you got any better im the same as you im 30 years old and was well respected in my area and could handle a scrap with most people ever since ive had all these problems and have to use a walking stick i have had numerous people wanting to fight and one even hit me when i wasnt looking, people tell me to ignore it and that they are idiots but its so hard when only a few months ago they wouldnt of dreamt of this.
I have never fealt vonurable but at theoment i really do im hoping for a reply that ypu are healed and well bit if that isnt the case i also want to know what to expect,
Hope your ok pal.
Steve
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Post by Ram on Mar 8, 2016 2:55:12 GMT -6
Hi Steve, Why do people fight and hit you in this condition when they should be really helping you now?
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kayaker66
Junior Member
Trying to get educated and informed for making the decision on when to have back surgery.
Posts: 5
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Post by kayaker66 on Mar 9, 2016 7:28:12 GMT -6
I feel your frustration and anger. I have gone through that already but still have my moments. I am in the research and education stage with my tumor diagnosis. I am a male in my late 40's. My journey with a spinal tumor started on January 7th of this year (2016). Had MRI for low back issues which are actually currently being caused by a bad disc between L4 & L5. In the process they found a spinal tumor up near my L1. The tumor is currently relatively small and apparently nor causing any issues. Because of its location, any problems should start occurring on my left side. Surgery is recommended sooner than later before it can start causing any neurological issues. I am currently thinking of having surgery within the next year. Hang in there.
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