|
Post by pringleman on Jun 18, 2014 20:26:58 GMT -6
Hi Jennn,
Sorry to hear about the itchy feeling. I am afraid I have no suggestions on this one. For the first time I seem to have been spared one of the side affects. I found gabapentin caused me more problems than it solved.
I am doing well. Back at work 3 days a week and doing some gym work. Feeling pretty good. But starting to count down to the next MRI (22 days).
Hope the itching goes away soon.
PG
|
|
jennn
Junior Member
Posts: 17
|
Post by jennn on Jun 19, 2014 18:41:22 GMT -6
How long did it take for everyone to return to work after surgery?
Sent from my XT1080 using Tapatalk
|
|
drex
Junior Member
Posts: 14
|
Post by drex on Jun 19, 2014 19:18:30 GMT -6
Hi Jennn, I had my surgery in mid-October and was back at work full-time at the beginning of January. Probably could have managed going back part time sometime in December but decided it was best to make sure I was totally ready. I haven't had too many issues with work, just a sore neck towards the end of the day. I used to wear a neck pillow sometimes to give my neck so,e extra support if I was leaning over my desk doing paperwork.
|
|
jennn
Junior Member
Posts: 17
|
Post by jennn on Jun 27, 2014 10:01:26 GMT -6
My six week post op appt is next week. Based on your experience, will. they do a MRI or other scans?
Sent from my XT1080 using Tapatalk
|
|
|
Post by lw on Jun 27, 2014 10:31:48 GMT -6
Hi Jennn,
I'm coming up 6 years post op and I have yearly MRI scans on my spine. I've heard of people starting off at 3 month scans, then 6, then gradually going for longer periods provided the tumour remains stable. I guess it all depends on the type of tumour and how much, if any, is left after surgery.
|
|
|
Post by pringleman on Jun 29, 2014 7:30:49 GMT -6
For me they did a 6 week MRI to see how the surgery was healing and to see what was left of the tumour. I am on a routine of 3 monthly scans to see how the tumour is behaving. My next one is 10th July.
The longer the tumour is stable the longer the time they put between scans. A friend of mine whose surgery was about ten years ago is now on 5 yearly scans.
Good luck with everything.
|
|
jennn
Junior Member
Posts: 17
|
Post by jennn on Jul 1, 2014 18:01:49 GMT -6
Six week follow up went well. Dr Rodts was very happy with my progress. I will continue with PT and OT, but now it will be outpatient as opposed to at home. Overall great news and very thankful!
|
|
jennn
Junior Member
Posts: 17
|
Post by jennn on Nov 4, 2014 9:56:48 GMT -6
Almost six months post op from the SCT (ependymoma). Also had a total thyroidectomy and radioactive iodine as part of the treatment. Ugh. It feels like I'm regressing in my SCT healing (foot drop, numbness, and tingling). My NS has ordered a MRI - just waiting on approval from ins. It seems like a lot of people on here have regrowth in their SCT, how quickly did they experience symptoms (if any) or diagnosis...then what was the treatment plan? Also, has anyone else dealt with thyroid cancer too? My drs say the two are not related, but that is hard to believe since I have been healthy until this year (36/yes old).
|
|
jennn
Junior Member
Posts: 17
|
Post by jennn on Nov 8, 2014 15:02:16 GMT -6
Somebody has not be able to relate... I'm at my six wk point from my sct surgery (c3-t1). So many questions...how often do ependymomas reoccur? I've been "foggy minded" for months and its affecting my job. Do I keep trying to work or apply for disability? I could go on and on...
|
|
|
Post by nomoremorty on Nov 9, 2014 21:34:23 GMT -6
Jennn - Sorry to hear it When they did my first full-spine MRI right before surgery they found a nodule in my thyroid. Thyroid issue wasn't cancerous and still just monitoring. Thyroid doc seemed convinced that the two weren't related, and it was just coincidence. Perhaps you might find cern-foundation.org a helpful site as it has tons of statistics and research on ependymomas and recoccurance?
|
|