Paula
New Member
Posts: 2
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Post by Paula on Jun 26, 2010 22:52:38 GMT -6
Hi Tgratehouse Thank you for getting back to me . I had a Brain MRI as well as a Spinal MRI. The Neurologist did not mention the brain result though but upon reading the report myself I noticed it said that there is a "tiny cavemous malformation present within the central aspect of the left temporal lobe" but I am not sure if this means anything? Cheers Paula
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Post by Todd on Jun 27, 2010 16:13:13 GMT -6
Cavernous malformation is a collection of blood vessels that can cause neurological dysfunction. perhaps that's what is causing the other issues.
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Nick
Full Member
Posts: 26
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Post by Nick on Sept 9, 2010 19:39:37 GMT -6
I have an update for the group. I went for my 3 month MRI last week, and the follow up appoint with Dr Morrill today. As it turns out there is no growth, and the tumor is stable. So, there will be no need for resection at this time and my next MRI will be in 6 months.
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Post by betty on Sept 9, 2010 20:35:58 GMT -6
Great news Nick!
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Post by tc on Sept 10, 2010 8:50:08 GMT -6
Nick - That is wonderful news about "no growth". I am in the same category as you: MRIs every 6 months for my cervical tumor. It hasn't changed much since it was discovered in 2007. I'm hoping that I never need surgery ever! Teresa
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Post by Todd on Sept 11, 2010 10:27:57 GMT -6
Your journey with this, Nick, both inspires and saddens me. I am so glad the we, as a collective, are able to provide people with our own experiences and advice which ultimately has lead to you, Nick, not rushing into surgery and, therefore, not having to deal with the devastation that surgery does. You are very fortunate and your story, which was nearly the same as mine, will help others sit back, take a breath, and discuss options other than surgery.
The sadness comes from my having found this site prior to surgery but not signing up and asking questions until after surgery. I might have wanted to watch and wait even though my tumor was causing me slight problems, they were no where near the problems I now have post-op. It's tough sometimes not to live with a bit of regret about my decision. I have to believe that what i am going through has a purpose and I find considerable reward in being able to help others through this.
take care, nick, and keep us updated. Your updates actually add to the body of research on how to best treat these tumors.
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Nick
Full Member
Posts: 26
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Post by Nick on Sept 13, 2010 16:51:55 GMT -6
To me there is a certain amount of bittersweet feelings when I come here to report. I have the feeling that I have dodged a major bullet for the time being. I think shrink daily. I know that as I make my posts telling of the good news of my case thus far; I also am aware there are a number of folks that sadly don’t have the same good news to report, and I feel some remorse. I always say a little prayer for those whose stories I read that are about to enter a challenging surgery and recovery. Thanks Todd for making me feel better about my posts, it was what I needed to hear.
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Post by Todd on Sept 13, 2010 21:36:27 GMT -6
keep them coming when you think about it Nick. if nothing else, to keep us updated when you have MRIs done.
I wouldn't wish this on anyone, so, don't feel guilt. we all dread hearing about another person afflicted and having to go through it. but we're here to help and support and cry with anyone who needs it.
take care
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Post by tc on Sept 14, 2010 8:46:25 GMT -6
To me there is a certain amount of bittersweet feelings when I come here to report. I have the feeling that I have dodged a major bullet for the time being. I think shrink daily. I know that as I make my posts telling of the good news of my case thus far; I also am aware there are a number of folks that sadly don’t have the same good news to report, and I feel some remorse. I always say a little prayer for those whose stories I read that are about to enter a challenging surgery and recovery. Thanks Todd for making me feel better about my posts, it was what I needed to hear. Nick - Very well put! I feel the same way . . . feeling guilty in reporting that I have "dodged a major bullet for the time being." It's not all good though, because I'm not without symptoms. Not an hour goes by that my body doesn't remind me about this tumor in some way. I didn't think I'd feel so old (stiff, achy, tired) at this point in my life! Lots of times, my legs feel like I'm dragging lead around. My neck muscles hurt all the time. My arms get tired just holding up a hair dryer. It's amazing how much annoyance a tiny tumor can cause because of its location. So, I don't feel normal, but the neurosurgeons say that surgery at this point would most likely make me feel worse. I'm hanging in there, being a health nut with diet, exercise, sleep, and my faith. Teresa
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Nick
Full Member
Posts: 26
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Post by Nick on Mar 4, 2011 18:31:04 GMT -6
As an udate to the group, my 12 month journey in wait and see category continues. I had another MRI today and will see the NS next week for the results. Think Shrink!!!
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