Post by macaws49 on Jan 24, 2008 16:30:12 GMT -6
My 24 year old son had an ependymoma that was removed. it started in
the mid thoracic area and extended into his caudal
equine. after the surgery he developed a cyst in the
mid to lower thoracic region. It is not on the upper side of the spine. He has had multiple shunts
implanted that have not given him any relief. he sees
a pain specialist and is on massive doses of fentanyl
and lortab for pain with minimal relief. He still has
neurological symptoms ranging from nerve pain to
urinary retention, to lower extremity weakness. It is getting worse daily. He will be in a wheelchair again soon. Could you please lead me to a very qualified doctor. Location does not matter. The neo surgeon he has does not know what else he can do. My son has medicaid now but will have medicare in Feb. We found out last week his tumor is back also. He is a good boy, my little hero.
the mid thoracic area and extended into his caudal
equine. after the surgery he developed a cyst in the
mid to lower thoracic region. It is not on the upper side of the spine. He has had multiple shunts
implanted that have not given him any relief. he sees
a pain specialist and is on massive doses of fentanyl
and lortab for pain with minimal relief. He still has
neurological symptoms ranging from nerve pain to
urinary retention, to lower extremity weakness. It is getting worse daily. He will be in a wheelchair again soon. Could you please lead me to a very qualified doctor. Location does not matter. The neo surgeon he has does not know what else he can do. My son has medicaid now but will have medicare in Feb. We found out last week his tumor is back also. He is a good boy, my little hero.