Recurrent Meningioma C6-T2

[deb]

I am having more complications from my last surgery (8/07) and am progressively getting worse neurologically. I cannot feel my left hand or foot, have headaches, my pupils are unequal in size and my left eyelid droops. Has anyone had any issues with complications after the surgery? I am really struggling to be at work and am also wondering if anyone has had any experience with filing for SSI disability. I have an appointment with a neurologist 2/28 and I am not sure what she will tell me.....Anything is appreciated as I am at my wits end.

[john8888]

Deb

Yikes

I had a C7 to T3 done in Dec 2007.

I also have dead/numb left foot and numbness down the left side.

There are good days and bad days, but when you say you are progressively getting worse neurologically that seems to me to something to look into quickly.

My unscientific advice would be to see if the neurologist can get you a post surgery MRI. Without that they can not really see what is going on.

I wish you the best.

John

[deb]

As an update....I did see a Neurologist and she has ordered a MRI of the brain as well as the cervical and thoracic areas. Nothing like spending 2 1/2 hours in the scanner. The neurologist thought that I had low pressure in the spinal fluid that circulates around the brain and that is why I am having the constant headache. She also was concerned about the amount of fluid that may be collecting where they removed the tumor around the C7 area and that may be why I am having so many more neuro problems. I go back to get scanned on the 13th so perhaps they will find something, fix it and I can go on the road to recovery. Anyone out there have anything that sounds like this? Thank you all for your support.

[drummer904]

Hi Deb,

I'm having some post surgery problems too including hypersensitivity and spasms/tome that have been getting worse in the last year and a half. I dont get headaches like i used to, but they've been a little more frequent lately. Anyway, im going to see my neurosurgeon next monday since none of the meds they've been trying on me aren't working. Plus i really want an mri for peace of mind. i just hope mine isn't 2 and a half hours long!! Good luck to both of us!!

[went]

I'm on SSI.

I don't know if I can answer your questions, but I can try.

*Edit: I'm actually on something called Social Supplementary Income, or something like that. I'm not entirely sure.

All I know is that my cripple check comes once a month in the mail, because I was deemed unfit for work, or something along those lines. I cash it, and have my gimp money.*

[drummer904]

I think it is supplemental security income, which is seperate from disability. i didnt know about any of this stuff until after my surgery. i had applied for medicaid since i had no insurance. (now thats alot of fun). then after a few months, somehow i automatically applied for disability and ssi. it took 5 months to get disability and 9 to get ssi. so i might be able to help some.

[vickie]

I guess I was really lucky when it came to the Social Security Disability. I was diagnosed in April 03 and was approved within a month. I don't even remember filling the paper work out for some reason. Maybe it was all the drugs I was on. I just remember it was real easy but I've heard it's hard and takes forever for some people. The medicare took six months to kick in, I guess they wanted to make sure you don't get healthy and workable before they give you insurance or should I say pay for the insurance. When I was on my long-term disability and Social Security I almost made as much as I did when I was working (thank the Gods my boss was a Forensic Economist and knows all about that stuff and had me covered. When they stopped the long term disability what a reality shock 715.00 a month this year. I'm sooo rich How do you get your check delivered by mail, mine has to go in a bank I'd so much rather have it sent by mail well unless it got ripped off.
Keep believing the best on bad days and good ones.