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Post by drummer904 on Aug 6, 2008 23:57:31 GMT -6
I was wondering how much PT everyone had? And has anyone returned to PT after say a year or so for more because of changes in movement/strength? I haven't had much change but wondered if i should go back since i have a hard time doing what i should be doing at home.
Thanks.
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Post by Oscar Medina on Aug 7, 2008 3:04:27 GMT -6
What is your condition after surgery?
I had loss of sensation from my nipples down, but have all my motor function intact. I did have to go back to PT after a year because I lost movement in my torso. I did recover from that.
Give me more info if you can. I'd happy to give more direction.
Oscar
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Post by joanne on Aug 7, 2008 7:13:53 GMT -6
My surgery was 9 years ago. I have been back for PT at least 4-5 times. I try to go to the gym, but frequently find myself less stable, and weaker, and a few PT brush-up sessions don't hurt. I just went last fall, but location was bad so I was unable to continue. I find a huge difference in therapists. Some are basically trained in sports injusry, and they don't know what to do with me! I found very few that are trained in spinal cord injuries.
You should check it out with your doctor, and if it is covered under you insurance, then why not?
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Post by drummer904 on Aug 9, 2008 13:19:01 GMT -6
Well i am numb from the belly button down and can only wiggle my left toes a little.
I just got results back from the mri and says that my spinal cord is tethered at the level of surgery, so now we are wondering whether or not to have surgery again since my NS thinks its cauing my spasm and hypersensitivity problems, and if so, will i need to do alot of rehab after that anyway...
My thoughts on this are, what do i have to lose since i am in a wheel chair already? It kind of gives a little hope to regain some motor function and bowel/bladder function!! Wow, what a blessing that would be.
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Post by Charity R. on Aug 17, 2008 19:57:17 GMT -6
I had PT for about 3 months post surgery. At that point I wasn't making any more progress.
About a year later I went back for an additional month of PT but haven't had any since.
Charity
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Post by peilynne on Aug 21, 2008 7:57:34 GMT -6
Hi, I'm a little over a year past surgery and I still go to physio often, three times a week at least, this week and the next two every day as we r trying to take full advantage of the botox, i hope as time goes by i will remain dedicated to physio as i really think this helps, i met patients who didn't keep up with therapy and their joints are really stiff
Some suggestions are hydrotherapy, the pool, if there is one available in your area
Also, if you have someone who would be willing to do daily stretching with you, that would be great
i also do leg and arm weights at home, i'm trying to keep myself in as good as shape as i can, as the first chance i get to try stem cells, i will, and you never know what the future may hold for all of us!
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Post by stevieray on Aug 21, 2008 12:14:47 GMT -6
I had several months of PT after my surgery and again 2 years after for a month or two. Ongoing I have had massage, chiropractor, rolfing, yoga, meditation, to deal with overall health and back pain/spasms. I believe for us and many with other back problems it is an life-long process.
Steve
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Post by john8888 on Aug 23, 2008 13:17:43 GMT -6
I hammer away at the gym each day repeating all the different therapy exercises I have been given from 5 different therapists over the last 8 months since surgery.
At this point I see therapy as a place to collect exercises and ideals. I visit my current therapist every 2 weeks and she has a list of new exercises for me to try. I just add them to my big list and work them into the daily routine.
It is a long road.
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Post by badtazz on Aug 24, 2008 6:36:49 GMT -6
Wow, so many of you are doing so good, I guess I must have drawn the short stick. I also have a tethered spinal cord, and they tried to fix it each time, but it didn't work. Not that it won't for you. As for PT, it caused me way too much pain, and wasn't helping, so I don't go. I am at the point of just doing what I can each day. I'm only 46, but have the body of a 100 year old. As for the Bowel/Bladder, My doctor told me that horse was gone after it hadn't returned after 1 year. Now it is 5 years since my first surgery. I hope that you can get yours back.
Someone needs to put the stem cell research on the fast track for all of mankind. I hope you get better soon.
Jeff
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