Question on Spasticity from the 2008 conference

[Linda51]

Okay you guys that were at the conference help me out with this question that was sent to the SCTA email address. I was at the conference but I was working behind the scenes so please help us out. Also Jennifer you may want to advise as well since you did speak on this. Thanks in advance. ~Linda

I am a 10 yr survivor of an intramedullary ependymoma, and am having problems with muscle spasticity and pain. I noticed that the recent conference had a number of sessions on spasticity, and wondered what treatment options were suggested for this particular issue. I would really appreciate any information you could share with me.
thank you.
Janet

[Scott]

Janet,
I have suffered from severe spasticity in my feet since my first of four SCT surgeries ( T7-9 ependymoma ) back in 2001. I've tried a lot of treatments and currently have baclofen in my pain pump as it got so bad a few years back. Please email if you have any questions. I'll let you know what I have experienced and maybe that might help some. My email is [e-mail].

Scott

[otjenn]

Hi Janet. After my first surgery, I had a lot of spasticity and went through a lot of different treatments. There are medications, which I found to be very sedating, tried Botox shots and then got a Bacolofen pump which has been the best - less fatigue etc - in combination with therapy including aquatics (in a warm therapy pool). Also myofascial release (www.myofascialrelease.com for more info) is great if the pain is musculoskeletal vs. nerve. any further questions, just let me [e-mail]. Good luck! Jenn