|
Post by unlikely on Jun 14, 2018 19:20:06 GMT -6
Touch is a sense that most people seem to take for granted...
Tactile loss or impairment (numbness) is often very difficult to explain.
Here are my new questions:
What are ways to repair the damage from spinal cord tumors, spinal cord compression, and/or treatment? How can unavoidable or avoidable damage to the spinal cord and/or spine be repaired? Are there ways to fix or repair or reverse any damage from cutting in the spinal cord and/or spine?
What happens to the posterior (sensory) horns, lateral spinothalamic tract and sensory root in a patient with a spinal cord disorder and/or spinal cord tumor disease? How do sensory tracts heal, repair, renew, restore, recover, or regenerate?
When will the focus be on BOTH motor function and sensory function? Who specializes in sensory impairment from CNS disease or injuries? Who understands or studies people living with and coping with tactile loss or numbness from CNS injury?
How can quality of life without a functional sense of touch (either numb or impaired) possibly be the same as or comparable to quality of life with that sense? Where are the support services for people with tactile loss or impairment?
With an unknown prognosis, how does a person plan? For five years of life or for over thirty five years? Both approaches result in very different kinds of new problems. What to do about health insurance, medical bills, "pre-existing condition" exclusions, threats, incorrect diagnostic codes, general unfairness, meanness, unjustness...?
|
|
|
Post by susan on Aug 21, 2018 11:27:25 GMT -6
I know it's been mònths since you posted, I am mostly on the facebook group now. Where was your tumor? You sound like you must be like me. My tumor was in the lateral dorsal column and enveloped spinal nucleus V. I am more than ten years after surgery, I haven't improved since about 2 years after surgery and actually got worse about five years ago. There is very little understanding or sympathy for those of us with sensory issues.
|
|
|
Post by unlikely on Oct 30, 2018 10:40:37 GMT -6
Thank you for replying. I'd much rather post here than join FB. I hear FB consumes time... and I'm already often at my wits' end with touch screens. New question: When will someone invent artificial or electronic noses to detect cancers and replace MRIs? If dogs can smell human cancers, why not program a computer to smell cancer?
|
|