Post by cyclingbob on Apr 7, 2017 12:47:13 GMT -6
Hi to All,
This is my first post. I am also a member of the BORG : Brain Trust (BORG) - Bruce Blount Facilitator where I
post frequently.
Details of my tx below:
Bob
Spinal Cord Ependymoma (Intramedullary) T11/T12 with Rosenthal Fibers Grade II.
Operated at Boston MGH 7/30/12 - Laminectomy - Gross Total Resection.
Tracy Batchelor Neuro Oncologist - Executive Director Pappas Center for Neuro-Oncology
John H. Shin Attending/Instructor Neurosurgery
Lumbar MRI 5/6/16 shows stable. Next MRI 5/9/17 Lumbar and Thoracic. I will bring a lunch
Balance issues. Bilateral foot neuropathy/pain at 6-8 of 10 since Feb, 2016. Prior pain 5+ of 10.
Pain at the gluteus medius/piriformis. Bilateral piriformis syndrome. Lyrica started 1/16/17
Active with Tai Chi, stretching, pistol and rifle shooting, walking now limited. Retired October, 2016.
Boston MGH: I am very thankful for everyone’s expertise, anticipation of problems, and cheerfulness
I am coming up on 5 year anniversary with no recurrence - great news.
My question - Pain management. Not so good.
I have tried everything: Acupuncture, reflexology, cannabis, PT etc. You name it and I have
probably tried it. I did try gabapentin in year 1 but no benefit.
The last hurrah has been big pharma - Lyrica started 1/16/17. Now at 100mg at night and 75 day. Still working on dosage.
Pain still runs 7+ and worse at night. Titration has been modest so little or no side effects. No weight gain.
I hate the idea of big pharma but no other option.
Pain docs at Mercy Hospital Pain Ctr in Portland Me don't have anything more in the pain arsenal.
Any one have experience with Lyrica and dosage?
Has anyone had any success reducing neuropathic pain?
My expectations - I will just have to gut it out.
Cheers,
Thanks.
This is my first post. I am also a member of the BORG : Brain Trust (BORG) - Bruce Blount Facilitator where I
post frequently.
Details of my tx below:
Bob
Spinal Cord Ependymoma (Intramedullary) T11/T12 with Rosenthal Fibers Grade II.
Operated at Boston MGH 7/30/12 - Laminectomy - Gross Total Resection.
Tracy Batchelor Neuro Oncologist - Executive Director Pappas Center for Neuro-Oncology
John H. Shin Attending/Instructor Neurosurgery
Lumbar MRI 5/6/16 shows stable. Next MRI 5/9/17 Lumbar and Thoracic. I will bring a lunch
Balance issues. Bilateral foot neuropathy/pain at 6-8 of 10 since Feb, 2016. Prior pain 5+ of 10.
Pain at the gluteus medius/piriformis. Bilateral piriformis syndrome. Lyrica started 1/16/17
Active with Tai Chi, stretching, pistol and rifle shooting, walking now limited. Retired October, 2016.
Boston MGH: I am very thankful for everyone’s expertise, anticipation of problems, and cheerfulness
I am coming up on 5 year anniversary with no recurrence - great news.
My question - Pain management. Not so good.
I have tried everything: Acupuncture, reflexology, cannabis, PT etc. You name it and I have
probably tried it. I did try gabapentin in year 1 but no benefit.
The last hurrah has been big pharma - Lyrica started 1/16/17. Now at 100mg at night and 75 day. Still working on dosage.
Pain still runs 7+ and worse at night. Titration has been modest so little or no side effects. No weight gain.
I hate the idea of big pharma but no other option.
Pain docs at Mercy Hospital Pain Ctr in Portland Me don't have anything more in the pain arsenal.
Any one have experience with Lyrica and dosage?
Has anyone had any success reducing neuropathic pain?
My expectations - I will just have to gut it out.
Cheers,
Thanks.