Post by cutiebabe36 on Jan 20, 2017 2:27:52 GMT -6
My name is Khristina..my story So Long!!! I had a tumor at c2 c3 Level ate through both vertebrae..pushed my spinal cord almost all the way over.They said it was a dumbell shape..a kewi in each sized. I endured so much pain for 9 years..i was ignored..misdiagnosed. not taken seriously. Said I was under to much stress..it's torticollis...mmmmuuuaaahhhhh. so i was 20 weeks pregnant with twins..me shortening this. 4 months in the hospital.we all 3 survived. 16 hours..2 surgeries with a 1 day break in between..from anterior and posterior approach. A rod from c1-c5. 4 plates 8 screws..cadaver bone...radiation cause they couldn't remove the part around the vertebral artery. They said I wouldn't walk again again my cord was damaged so bad...don't ever lose hope!!!! for realzzz..i was 28 and in a nursing home..mom of 4 that couldn't even feed herself. I was in a Gerry chair..Now I'm going to school to become a nurse. Still have horrible nerve pain..it's still 4cm x 2.5cm x 3 cm. Pushing info my cord a lil...lil bastard won't die!!!! Anyone else having issues??? Like it keeps growing??? They didn't understand. Not enough research they said. Told them..pain started when pregnant 1st baby 2007..nursed her 3 years..few months done breastfeeding till prego with 2nd baby..nursed 2.5 years..u cd see it sticking out of my neck. 6 months off from nursing.then prego with twins. Then nursed twns 17 months. They didn't understand how a shwanomma could be so huge in someone 28...to eat through bone you've had it 10+ years...i seriously say it's all hormones. When prego with the twins the pain was so unreal..u cd see it growing. That's when i couldn't feel my hands or feet anymore. Couldn't lift my right leg to walk...8 weeks ago i had mri..still growing. 6 weeks later if any growth we will operate immediately. Radiation Oncologist says maybe you should stop breastfeeding cause in some neuromas we see it does affect. 6 weeks later..no growth..ummm maybe i was right? In 10 months it grew from 2mm to 4cm?.ummm yeah. I was nursing 2 infants. I aim to find others with similar stories of pregnancy and breastfeeding stories of growth.saw 1 operation on YouTube 20 year old 20 weeks prego..huuummm. let me hear your stories..any questions ask away. I'm an open book. Im in Lincoln, NE