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Post by evergreen63 on Oct 5, 2013 12:27:42 GMT -6
My husband had a tumor removed in 2004 (T-4 epenydoma) and has bladder/bowel issues/sex issues ever since. His urologist now wants to try a sacral nerve stimulator. I've read up on this and it sounds great, just wanted to know if any other SCT patients have had this.
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poles
Full Member
Posts: 27
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Post by poles on Nov 5, 2013 10:39:59 GMT -6
Hey Evergreen,
My bladder and bowel care nurse has suggested a sacral nerve stimulator may be something i could benefit from, i currently self cath twice a day and was hoping that a Sacral Nerve Stimulator may eradicate the need for me to do this (ever the optimist!).
I am currently waiting for a reply from the specialist to see if this is a viable option for me.
I'd be very interested to hear if you went any further with this, and if so what the results were.
All the best,
Poles
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Post by funnywalk on Nov 14, 2013 16:36:03 GMT -6
Me too!
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Post by Leofwen on Nov 16, 2013 15:37:04 GMT -6
Me too
Doe this work in the same way a spinal cord stimulator?
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Post by Slip Kid on Dec 5, 2013 13:18:10 GMT -6
I am 7 months out from a hemangioblastoma removal from my T12/L1. 51 year old very fit healthy male. Post surgery I have had to self-cath, do digital stim in my shower to clear bowels, and have very limited sensation in my genitals. I can achieve erections and orgasms, but they are very weak. Needless to say, it's all very frightening and depressing. Things move so slow, it's hard to tell actual progress. I can push out small amounts of urine, and have been able to void a few times to around 400 ML left in me. I'm have been very disappointed with the time and attention level I've received so far from medical professionals, and am hopeful there is some advice or resource that may assist toward full recovery. I'd literally try anything to ditch the catheters and improve sexual function. Thank You!
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