|
|
Post by suzzie25 on Aug 1, 2012 18:53:03 GMT -6
I would love to have an in person support group. It would be so nice to meet people in person. It seems as everyone is so spread out. Does any one know if spinal cord tumors are really rare? I never met any one with one in person. I guess they are...suzzie
|
|
|
|
Post by Lostinthewash on Aug 14, 2012 14:36:37 GMT -6
We are one in a million. Literally.
Sorry I'm not from NJ. I'm from a city of approx 5 million and I haven't been able to find anyone with an intramedullary ependymoma (my kind of spinal cord tumour).
|
|
|
|
Post by Jersey_guy on Nov 16, 2014 16:40:55 GMT -6
Hi,
I have recently been diagnosed with intramadullary tumor at C7 -T1. I live in Hillsborough NJ. I was diagnosed on Monday last week. My neuro surgeon wants to do surgery at the earliest.
|
|
|
|
Post by Bird on Nov 21, 2014 11:16:13 GMT -6
Checkout the spinal cord tumor support group on Facebook, too. The group is quite active and you will probably find more NJ people there!
|
|
