logan
New Member
Posts: 1
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Post by logan on May 2, 2018 13:32:59 GMT -6
I am 22 years old and getting surgery to remove in a month. The lesion is 10 x 5mm and could be astrocytoma or ependymoma. My symptoms right now include numb toes, Bladder control, tingling in hands, feet, and left leg. I was diagnosed in 2012 after a car accident and just this last year started showing symptoms. "where there is fear there is not gratitude" this has been keeping me sane. I am thankful to still be alive after the car accident and blessed to be surrounded with people who love and support me. I guess the worst part about this whole thing is the unknown! I am very scared but trying my best to stay positive. If anyone has had a similar lesion removed please share your experience. I am just trying to gain as much information as possible. I am a senior in college and not mentally prepared for the surgery. What helped you prepare? What am I about to experience? Thank you all so much!
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Post by kathyb on May 17, 2018 2:08:20 GMT -6
Logan, I hope you are ok. Where was the lesion? When do you have your surgery? I had the numbness, tingling etc...and also began having a difficult time moving my neck. I can now move my neck but have a lot of pain issues because my tumor had "eaten into" nerve cells. Mobility actually good, some balancing and fine motor skills when using my hands. I try to keep as positive as I can and that helps. I had a son in kindergarten at the time and still feel very angry at times because he is growing up with a mom who sleeps all the time. I don't know what to tell you to help you mentally prepare as it happened fast for me. It is tough, like I said, I try to focus on positive things, I started buying stuff (coffee mugs, postits, calendars) with the catchy phrases to keep me focused.....photos of my family, happy movies, getting outside, yoga..... Kathy Ependymoma C3-C7 February 2010: Eric Sipos; Tucson, AZ
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