Post by Sherri on Nov 15, 2015 7:18:09 GMT -6
I'm looking for some advice. My 12 y/o had a c2-7 glioma removed last Tuesday. She has residual sensation loss in her left arm and leg.
Physical and occupational therapy have started and she is working to her tolerance.
She feels like the dr's abs nurses, as well as the therapists discount her pain and have low tolerance for when she gets too worn out
The pain was under control with iv, however the iv was discontinued and switched to oral. She has had 2 pretty restless nights now
The left hand neuralgia is painful and not much held that.
I do think the NS has been responsive to her pain and feelings overall.
Anyone else have this any suggestions and advice would be appreciated
Thank you
My best to you all!
Physical and occupational therapy have started and she is working to her tolerance.
She feels like the dr's abs nurses, as well as the therapists discount her pain and have low tolerance for when she gets too worn out
The pain was under control with iv, however the iv was discontinued and switched to oral. She has had 2 pretty restless nights now
The left hand neuralgia is painful and not much held that.
I do think the NS has been responsive to her pain and feelings overall.
Anyone else have this any suggestions and advice would be appreciated
Thank you
My best to you all!