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Post by Traciann24 on Sept 19, 2014 18:40:04 GMT -6
Does anyone have any experience with severe scoliosis in their child after surgery for astrocytoma surgery? My 14 year old son had surgery in July 2013. Has a new scoliosis curve of 40. Anyone have scoliosis surgery after their spinal cord tumor surgery? Thanks.
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Post by elizabethresearcher on Apr 9, 2015 11:22:00 GMT -6
Traciann24, I am so sorry for your son's surgery. I hope all is well. I am part of a research team that is investigating improvements to the main device used in spinal cord surgery after cancer, to help reduce the incidence of deformity post-surgery. This happens to more patients than many people know. With your help hopefully we can reduce this occurrence. goo.gl/forms/AKTB8fgrOK |
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Post by kimsmom on Jun 15, 2015 14:28:40 GMT -6
Hi Traciann24, My daughter also has an astrocytoma and underwent surgery to resect in 2007. Unfortunately, not much could be taken out at the time. She underwent chemo which stopped growth and reduced tumor by about 40-50%. Probably about 3-4 years ago she started to develop scoliosis and has been wearing a brace since then. For awhile it stopped the curve and actually improved it. Recently though all of the improvements have given way back to the original curve which is 36 degrees at this point. What has also occurred is a development of kyphosis that has gotten increasingly worse within the last year. (She is growing like a weed right now.) So, her brace is being remade to address the kyphosis and hopefully that will help. At this time she has not had surgery to address the scoliosis/kyphosis. We are hoping to avoid but it is a possibility. Her neurosurgeon has said that she could have that surgery if needed but the orthopedist just needs to be familiar with her prior surgeries as it could effect his approach. Sorry, that I can't provide any more information. If you ever want to chat, feel free to email me at denisethul@yahoo.com. Not sure how your son is handling things but I know this is such a tough time for my daughter (she's 11 now) and she just wants to be "normal" like her friends. Sending out positive thoughts for your son.  |
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