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Post by hairchik on Feb 14, 2008 18:08:46 GMT -6
Cavernous Malformation C2/ C3 surgery by Dr. Jallo Johns Hopkins in Baltimore,MD June 6,2007
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Post by agustin702 on May 2, 2008 20:40:36 GMT -6
I had the sme surgery as you had.I am about 2 months post op.I would like yto know about your post op symptoms.Is there a way we could email each other?Thank you.
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Post by hairchik on May 8, 2008 18:53:50 GMT -6
My e-mail is hair_stylin@yahoo.com
You can e-mail me anytime.
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sudz
Junior Member
Posts: 6
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Post by sudz on May 11, 2008 23:00:20 GMT -6
I had one removed at T3/T4 from Dr. Chang at Stanford in 2004.
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Post by heather on Jul 6, 2008 17:20:01 GMT -6
Hairchik and agustin702:
I'm praying that ya'll are still reading this link. Had C2/3 removed 3/12/08. Any feedback , comments would so be appreciated. Medical staff has been really helpful but I'd really appreciate hearing what ya'll have been experiencing ect... I don't know of anyone who has been through this. What is normal like post op, or is this the new normal?
I'm sorry ya'll have had to navigate this but I'm excited at hopefully hearing from someone else.
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Post by heather on Jul 6, 2008 17:23:32 GMT -6
C2/C3 CM removed @ University of Miami by Dr. Alan Levi and staff. Amazing facility and people.
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Post by hairchik on Jul 7, 2008 18:28:42 GMT -6
Heather,
I'm sorry to hear you had to join in on all of our fun! How are you doing since surgery? I have to say, my outcome has been pretty good. I still have numbness in my left hand but that's pretty much it. I had that for 5 yrs before my tumor was found though. Things are different after surgery, but everyone is so different. How were you before compared to now?
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Post by amandaisaacs82 on Jun 7, 2013 7:50:25 GMT -6
I just had surgery too in my upper neck in my spinal cord was a "tumor" cavernous malformation they say. Its been 5 months since my surgery and my whole left side and female parts are all numb tingling a burning sensation almost when anything touches me tho I do not feel touch I feel pins and needles has any one else experianced this? Am I left with this feeling...?? Or lack there of i should say.....I saw my neurosurgeon Wednesday he says not to get frustrated til 5 years have past what kind of news is that granted I turn 31 on sunday but I have beautiful young children whoms lives i feel im missing out on due to this pain.
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Post by amandaisaacs82 on Jun 7, 2013 7:50:57 GMT -6
Feb 1 2013 was my surgery
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Post by Heather2 on Nov 3, 2013 15:23:40 GMT -6
Hi Amanda... I'm 5 yrs post op.... Had same symptoms as you are describing..... And it will get better. My numbness is not nearly as challenging as it was the first year. Energy levels are much better. Pins and needles for me used to surge right before I had a Flair... But when the flair subsided... I felt an improvement in the degree of numbness. For me, any cardio workout will help decrease numbness sensations and increase ability to feel more for a few hours after working out. Don't put your life on 'hold' till u feel better... Do what you can.... And in my experience you'll see big improvements.
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