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Post by mel0127 on Feb 17, 2008 15:02:22 GMT -6
My name is Melinda. I had approximately 95% of my ependymoma removed in February 2003. I still have some residual problems (mostly bladder, stomach, and bowel related). I found your website today while surfing the internet and I'm really impressed with the wealth of information and the number of people who have been or are going through the same problems as myself. For such a long time now I have suffered from the "I must be the only one" syndrome. I'm so glad I've found this place and look forward to getting to know everyone.
Just wanted to say hello to everyone.
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Post by tc on Feb 17, 2008 16:40:26 GMT -6
Melinda - I'm so glad you finally found the SCTA website. I've learned more here than from any other source. It's been a godsend for me. I don't know why the site was so hard for me to find. I wish it would appear when you Google "ependymoma", but everything that comes up seems to be about brain tumors. Anyway, so glad you finally found us. Post your story on the People Page, if you have time!
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Post by drummer904 on Feb 17, 2008 20:59:19 GMT -6
Hi Melinda, dont worry about being the only one with post surgery problems, i did for a while too and after i found this site, i found alot of helpful suggestions from lots of people that help me deal with some of the problems (thanks everyone). You can ask about ANY topic you're dealing with... someone is dealing with it too!
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Post by 8338 on Feb 18, 2008 10:13:18 GMT -6
Hi Melinda,
I had my surgery for an ependymona five years ago from t1-t6 and I am left with numbness from the rib cage and various patches of numbness down both legs with numbness in both feet. Things don't seem to be getting worst but the cold back here in Buffalo makes me stiff.
I have adjusted to moving around differantly than I did before this sugery (I walk with a cane). I do, however, get down at times and that's when I come to this website. You're right this is a godsent. I don't know what I would do without this support group. I will check in later (that is, if the website lets me log in!)
Barb
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Post by richard0314 on Feb 18, 2008 12:23:40 GMT -6
Hi Melinda
I litterly cried the day i wrote my story because i realized for the first time i wasn't the only one. I had my surgery around the same time march 14 2003, and didn't find this site till just over a year ago. so welcome we are a unique family here and we all have a vast world of knowledge here to share. I just realized from Barbs response that she and I have almost all the same deficits. keep posting
Richard
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