Things I wish I didn't know

shannan
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Posts: 94

Things I wish I didn't know Oct 31, 2008 13:42:54 GMT -6

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Post by shannan on Oct 31, 2008 13:42:54 GMT -6

any of the "Omas". Mine being Ependymoma.
Add to that Cyst and Syrinx.
Neurosurgeon (and knowing specifically what he is capable of)
Lamenectomy
Radiation therapy and Radiation Oncologist
Debulking, decompression, resection
99% removal
Recurrance and regrowth
Nerve necrosis
Physiotherapy (although it is extremely beneficial)
Myofascial release
Baclofen, Naproxen
knowing what MRI stands for

That's it for now, feel free to add to my list, I'm sure I will again soon. Although apparently my vocabulary has been expanded, it's with words I really would prefer not to be familiar with.

Intramedullary Ependymoma T9 - S3. Surgery completed May 22, 2007 by Dr. Haq.

Original surgery for Intramedullary ependymoma in lumbar region completed in 1990 by Dr. Chaudhuri followed by 6 weeks of radiation.

Tmasgio Leader Posts: 388	Things I wish I didn't know Oct 31, 2008 14:04:10 GMT -6 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Tmasgio on Oct 31, 2008 14:04:10 GMT -6 Neuropathic Pain All of the Spinal cord segments Clonus Spasticity Bowel and Bladder Program SCI- what is stand for CSF Leaks Sexual dysfunction Physiatrist
	Intermedullary Ependymoma Grade II C3-C7 removed on 4/24/07 by Dr. Neill Wright ,Barnes Jewish Hospital, St. Louis , MO

shannan Leader Posts: 94	Things I wish I didn't know Oct 31, 2008 16:02:56 GMT -6 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by shannan on Oct 31, 2008 16:02:56 GMT -6 Atrophy - how could I forget this one
	Intramedullary Ependymoma T9 - S3. Surgery completed May 22, 2007 by Dr. Haq. Original surgery for Intramedullary ependymoma in lumbar region completed in 1990 by Dr. Chaudhuri followed by 6 weeks of radiation.

rugger8 Leader Posts: 75	Things I wish I didn't know Oct 31, 2008 18:43:22 GMT -6 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by rugger8 on Oct 31, 2008 18:43:22 GMT -6 How to use and clean catheters!
	Ependymoma T12 - L4 4cm removed Sept. 2004 by Dr. Gary Steinberg, Stanford Med. Center. Complete resection no radiation

drummer904 Leader Posts: 171	Things I wish I didn't know Oct 31, 2008 20:14:13 GMT -6 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by drummer904 on Oct 31, 2008 20:14:13 GMT -6 Im surprised no one threw in UTI's yet! And ditto to all the above.
	Ependymoma at t-8/t10, removed at Shands at UF by Dr Kelly Foote in Aug '06

peilynne Leader Determined to stay determined Posts: 281	Things I wish I didn't know Nov 1, 2008 6:38:14 GMT -6 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by peilynne on Nov 1, 2008 6:38:14 GMT -6 lumbar punctures and spinal taps OUCH
	~Lynne~ Intramedullary Subependymoma, removed June 21/07, C3-T2, 10 cm, laminectomy on five verts second surgery three weeks laters, csf leak

8338
Leader

Me!

Posts: 347

Things I wish I didn't know Nov 1, 2008 10:14:40 GMT -6

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Post by 8338 on Nov 1, 2008 10:14:40 GMT -6

Neurotin/gabapenten
"numb butts"
Balance issues
What effects a spinal cord tumor has on the ability to walk
PT for spinal cord injuries
Nothing against this organization but what the SPINAL CORD TUMOR ASSOCIATION stand for
Oh yeah....................Hand controls

Last Edit: Nov 1, 2008 10:24:26 GMT -6 by 8338

Barb-One of SCTA Sunshine Girls
Two surgeries for an ependymona, second one done by Dr. Jallo. the surgeries were done in 2002/2003 and 98% of tumor was removed. As of this date, left with deficits but staying positive and keeping mobile!

Jack Full Member I will ride again!! Posts: 31	Things I wish I didn't know Nov 2, 2008 6:08:17 GMT -6 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Jack on Nov 2, 2008 6:08:17 GMT -6 social security application FMLA lyrica cymbalta flexoral morpheine rehab of any type
	"What doesn't kill me makes me stronger" Intramedullary Ependymoma-Thoracic Decompression/Tumor resection 4/30/2007 Epidural Blood clot evacuation Surgery-acute paraplegia 5/1/2007- Lumbar Microdiscectomy L5-S1 8/12/2008

Post by shannan on Oct 31, 2008 13:42:54 GMT -6

Post by Tmasgio on Oct 31, 2008 14:04:10 GMT -6

Post by shannan on Oct 31, 2008 16:02:56 GMT -6

Post by rugger8 on Oct 31, 2008 18:43:22 GMT -6

Post by drummer904 on Oct 31, 2008 20:14:13 GMT -6

Post by peilynne on Nov 1, 2008 6:38:14 GMT -6

Post by 8338 on Nov 1, 2008 10:14:40 GMT -6

Post by Jack on Nov 2, 2008 6:08:17 GMT -6

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