Post by pg89 on May 2, 2016 18:39:05 GMT -6
Thanks everyone.
We're approaching the one month post op mark now, and improvements have been slow and steady. The NS took the risk of sending her into a spinal shock to get as much of the tumour out as he could, so things aren't as fast paced as we could hope for.
She spent three weeks in intensive care, primarily due to a catheter induced UTI which affected her chest power. She bounced back though. As of now, she's off any mechanical breathing support, and is slated to have her tracheostomy removed in a week's time.
No loss of sensation reported yet, and limited movement across the body that gets better with each passing day. Limbs that were erratic pre-op seem to be recovering faster according to her. She is mostly bed bound, and unable to use a smart phone due to weak fine motor skills, but that should be a matter of time.
The biopsy turned out to be a Ganglioglioma. The resident path said it 'recently turned' an anaplastic Grade III, but a parallel biopsy from a specialised institute says it's Grade I. I'm waiting for a third report to settle things down a bit in my head. The NS is asking me to skip worrying because he doesn't fully trust the resident path in diagnosing something so rare. And even if it was high grade, much of it got removed, leaving a lot more space to put hopes in. Residue is minimal at worst, and he can't spot any in the MRI. He's deferring any radiation therapy before he can consult others on the diagnosis.
I haven't had the heart to tell her about the potential malignancy just yet, fearing adverse impact on her otherwise good recovery. Hopefully the third report will give us more reason to be relaxed.
A few hiccups, yes, but the graph has only been up.
We're approaching the one month post op mark now, and improvements have been slow and steady. The NS took the risk of sending her into a spinal shock to get as much of the tumour out as he could, so things aren't as fast paced as we could hope for.
She spent three weeks in intensive care, primarily due to a catheter induced UTI which affected her chest power. She bounced back though. As of now, she's off any mechanical breathing support, and is slated to have her tracheostomy removed in a week's time.
No loss of sensation reported yet, and limited movement across the body that gets better with each passing day. Limbs that were erratic pre-op seem to be recovering faster according to her. She is mostly bed bound, and unable to use a smart phone due to weak fine motor skills, but that should be a matter of time.
The biopsy turned out to be a Ganglioglioma. The resident path said it 'recently turned' an anaplastic Grade III, but a parallel biopsy from a specialised institute says it's Grade I. I'm waiting for a third report to settle things down a bit in my head. The NS is asking me to skip worrying because he doesn't fully trust the resident path in diagnosing something so rare. And even if it was high grade, much of it got removed, leaving a lot more space to put hopes in. Residue is minimal at worst, and he can't spot any in the MRI. He's deferring any radiation therapy before he can consult others on the diagnosis.
I haven't had the heart to tell her about the potential malignancy just yet, fearing adverse impact on her otherwise good recovery. Hopefully the third report will give us more reason to be relaxed.
A few hiccups, yes, but the graph has only been up.