|
Post by brokenworkin on Apr 16, 2019 10:50:44 GMT -6
My husband was diagnosed 4 weeks ago with grade 3....I have been on the web since. We are seeing an oncologist this week and will be seeing a radiologist also. We have in motion to get an appointment at Mayo Clinic. I have to say yall I am extremely scared, I can't find a shred of positive in all the literature. I loved finding this sight tho. I have no idea what is in our future and I can't stop living in my head! He is not worried at all, but he hasn't looked anything up. I don't think he knows anything about what I have read, and I'm not telling. He had his resection 4 weeks ago, his tumor was T4-T6. He had been experiencing symptoms for 6mos before he went to the Dr., or even told me.
|
|
|
Post by Lane on Apr 22, 2019 11:48:01 GMT -6
I have grade 3 Ependymoma. I have two tumors on the brain stem and a tumor in the spinal cord around C5. I went for the surgery hoping that the numbness and weakness in my arms and hands would improve, but it didn't help at all. That was in March of 2015. In the year of 2017 I ate an all raw vegan diet, only fruits and vegetables, and the tumor in the spine shrank a little bit. In 2018 I ate a cooked vegan diet and the tumor stayed the same size. I've been told they can't remove the tumor because where it's located. They said chemotherapy will not help at all. I tried radiation and it didn't faze the tumor either. So, I'm trying alternative medicine. Different herbs and a vegan diet. I was really excited when the tumor shrink after I had a raw vegan diet. I got impatient and wanted even better results so I started eating a cooked vegan diet but that did not get the same results. I'm now trying the modified macrobiotic diet from Michio Kushi. I'll try another MRI in 6 months to see if I get better results. if not, I'll go back to the raw vegan diet. I'm going to order some graviola tea and see if that helps as well. In 2017, when my tumor shrink a little, my diet consisted of fruit for breakfast and fruit for lunch and basically a large salad for dinner. I would snack on pumpkin seeds. I also had four 8 ounce cups of fresh carrot juice made fresh at home with a juicer and four 8 ounce cups of Lou Corona's 's lemon ginger blast ( you can do an engine search for the recipe, it's also on YouTube). My husband was recently diagnosed with a grade III spinal ependymoma, T4-5. I have been on the computer since hearing the news. I can say it scared the begeezus out of me. We are working our way to MD Anderson, as that seems to be the only place I can find that has treated this kind before. Any advice would be greatly appreciated.
|
|
|
Post by acresaway7 on Jan 26, 2020 18:21:32 GMT -6
Hello Pringleman, I am grade 3 survivor, 1year and 10months. You are not alone.
|
|
|
Post by pringleman on Mar 9, 2020 0:35:55 GMT -6
Hi Acresaway7, good to hear from you. Hope you are still doing well.
|
|