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Post by poobear on Mar 9, 2016 8:35:03 GMT -6
I'm a new member to this site. I was 52 when diagnosed with an ependymoma (T12-L2) and when 53, had surgery to remove the tumor. I'm 13 months post-op and am experiencing the electric shock/burning pains in my back. Am very grateful for finding this site because no one has been able to provide guidance on whether this is normal or not. I was off work for 3 months following surgery and returned on a part-time basis for 2 weeks. I am still experiencing a lot of pain in my back and numbness/tingling/burning in my feet, especially my right foot, and legs. I have found it very difficult to sit or stand for any length of time and walking is a challenge (feel like I'm 90 - heck, I've seen 90 year olds in better shape). Even laying down for long is uncomfortable. And sleep is few and far between. This has posed challenges with trying to work and being able to focus between the pain, meds and lack of sleep. I am seriously considering disability until I can get this under control.
What type of coping mechanisms have others used to deal with these symptoms? Are you still, or able to continue, working? With my job I can ill-afford making any major mistakes. This could cost the company and I really don't want to put them in a bad situation.
It is very helpful to hear what others have to say about their experiences. People I've spoken with who have not had the experience of spinal cord surgery just don't seem to understand the continued pain. They seem to think that since I had the resection and the tumor was removed I should be running by now. I just can't explain this to them.
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Post by BBoyskire on Feb 25, 2019 9:15:50 GMT -6
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Post by Carriekire on Mar 5, 2019 21:51:01 GMT -6
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