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Post by Bob Hayes on Dec 13, 2016 21:01:11 GMT -6
You may be afraid of surgery as all of us are. But get that thing(I assume ependymoma) out asap. The larger it gets the harder to remove and more damage. I had a huge ependymoma from c2 to c7. I assumed it was just carpal tunnel and ignored it. Finally had MRI and the neurosurgeon wondered how I could function. The plan was to perform a laminectomy (remove bone from back of spine. Remove derma (wrapping) and cut cord directly down middle and remove tumor. You WILL lose your proprioception (where you are in space). My results far worse. Was like a baby . Had to re-learn everything. Plus the cord burst when derma removed and much of tumor exposed, so I didn't get precision cut. I'm now almost back to normal after 20 years; however, I live in unbelievable pain . Methadone is the only drug that helps and every few years I have to take a vacation from it as you grow tolerant of it. That is hell.
So bottom line, get it out now. Don't wait. I waited about five years putting my head in the sand. Be smart deal with it now. You will probably be fine.
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rj18
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Post by rj18 on Feb 8, 2017 15:36:58 GMT -6
Great advice- They found mine in November - Taking it out Friday - L1 to L3 - Anything I should be looking forward to? No pain, no symptoms going in- Found it after what I thought was a blown out disc Thanks
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Post by Connie on Apr 15, 2017 19:49:24 GMT -6
...my Mom,85 with Alzheimers,has a tumor in the c7 area.Has seen one neurosurgeon and he wants to operate and remove the tumor.It is both inside and outside the spine. Right now she has weakness in her right arm and issues with incontinence, which could be from the ALZ.
...I'm mostly worried about her age and medical history(diabetes,high bp,heart irregularities etc.) And I have heard that ANY anesthesia would most likely send her downhill dementia wise.
...Looking for a second opinion but no idea how. We are in the Albany,NY area. ...any help would be appreciated if anyone reads this.
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Post by Scott on Jul 2, 2017 6:13:29 GMT -6
Finding out this week what is going this week with the neck pain causing back pain and nerve pain. Already paralyzed from multiple Ependymoma surgeries.
Scott
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scott
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Post by scott on Jul 2, 2017 7:29:26 GMT -6
I'm going for my C spine test this week but, what were your symptoms of you Cervical Tumor and what type was it?
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Post by Cynthriaa Miller on Jul 6, 2017 6:51:55 GMT -6
Anyone else out there have their tumors in the C1,C2,C3 area of the spine? Mine are there and I had to have the backs of three of my vertebra removed and they covered it with tissue because my bones were so pushed apart they couldn't put them back on. My tumors also cant be removed or I would never walk again. So once a year MRI it is for me for years to come. I also have two cysts at the base of my skull. Can anyone relate to this or in this area? let me know! I had to have brain surgery done from C1 down C3 back in 96 and I was already near death or being paralyzed my brain stem was already bending in half and ready to snap. My surgeon Dr. Herz told me I had less than six weeks to really it or to be in a wheelchair and will die within two years. The surgery was hell and it is one I will never go through again I have neurofibromatosis type one and type two.
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Post by Leanne on Feb 26, 2018 22:24:00 GMT -6
i underwent surgery 6 weeks ago to remove a large spinal meningioma on C1, C2, C3 that was compressing my spinal cord. The scheduled 3 hour surgery took over 6 hours and was more complicated than anticipated. Bones were removed from all 3 affected vertebrae in order to reach the tumour. I was in hospital for 8 days. I was extremely weak, in a significant amount of pain and experienced some slight paralysis on the left side of my body. Three days post op, hospital staff had me up using a walker and I was shocked how difficult it was to walk. I was devastated. However, each day got a little better and I was discharged home after proving I could manage a few stairs with assistance from my husband. Six weeks later, I am doing well. I have ditched my walker for a cane and I have increased range of motion with my neck. I still have numbness and tingling in my arm, so continue to take gabapentin. My neurosurgeon warned me that recovery from this major surgery will take “months” so I am trying to be patient to the process. I consider myself very lucky and look forward to a complete recovery.
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vwj
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Post by vwj on Mar 27, 2018 14:53:25 GMT -6
I had a chiari decompression surgery in 2012 I think and did really well after that. I had a synovial cyst in my low back removed in 2014 and did really well with that. Now I have a tumor on the left side of my c-3. At first it was just a fluke that we found it. I had had both rotator cuffs repaired and kept having a problem with my left arm. After a year the doctor ordered and MRI and that was how the cyst was discovered. At first it was seen as another synovial cyst and we thought it could just be drained. I went back for a second MRI with contrast and they said it was a tumor not a cyst. They did a biopsy and it is not cancer. The doctor I saw said he could do the surgery but I would have pins and screws in my neck afterwards. I saw a second doctor and he said he would not recommend surgery as it was close to my carotid artery and if it was punctured it was difficult to repair and I could die or have a stroke. He recommended pain management. I am now having pain in my neck and in my mid back. Someone suggested I get another opinion from one of the teaching hospitals in NC. Has anyone had any experience with Duke or Wake Forest doctors for this problem?
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