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Post by Think Positive on Apr 23, 2008 17:24:56 GMT -6
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Post by drummer904 on Apr 23, 2008 23:22:59 GMT -6
Thanks Kim! Thats almost unbelievable!  |
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kerry
Junior Member
Live life well & pass it on
Posts: 17
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Post by kerry on Apr 25, 2008 0:46:43 GMT -6
Kim, thanks for the link to the video. It came at a good time for me to see him. It truely is inspiring.
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Post by cindylee on Apr 25, 2008 7:44:45 GMT -6
All I can say is WOW!!! To be able to get up and go every day and remain so positive is really something to aspire to. That man is truly a blessing to everyone he meets.
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Post by 8338 on May 2, 2008 19:05:55 GMT -6
Hi,
Haven't been on in awhile but am glad that you sent this link. Wow! what a positive man, I wish that I had him as a personal friend and could call him everytime that I wonder "why me?"
Thanks,
Barb
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Post by Sam on May 12, 2008 1:35:25 GMT -6
The way I see it, he does not have a choice. It's either accept it or be miserable for the rest of his life. I thought this video was extremely depressing. Are we suppose to feel guilty or dismiss our feelings about our limitations because someone else has it worst?
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Post by Ali-Brad on May 12, 2008 4:00:28 GMT -6
I too didn't enjoy the video. Yes he has to be positive OR not, but personally I find religion a very personal thing. I don't enjoy watching someone say that God made them this way for a reason. He is coping how he knows best and it works for him. We all cope in our own ways, but I wouldn't want to highlight my illness in promoting something else.
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Post by msweeney on May 12, 2008 11:13:33 GMT -6
I wanted to respond about feeling guilty if you have it better than others. One of the things I found so inspiring and remarkable about this forum is the range of severity of tumors as well as the different surgical outcomes. I am fortunate in that my tumor was T 11-9 and that it came out rather well. It was a subependymoma which are rarely recurrent. Even with all of that the fallout of surgery has had a major impact on my life and dealing with neuropathy and functional limitations has been a major challenge. I have found great comfort, inspiration and strength through this forum.
So I am always respectful of the fact that others have had far more difficult tumors, with less favorable surgical outcomes. Yet I have never felt that I could not come her and vent when I needed to vent or ask for and receive a sympathetic ear when I needed it nor has this forum ever failed to give me a place to come and talk to people who understand. We support and accept each other and we come to know each other through our common experience of SCT's and the beauty and hardship they have brought to our lives. We come to this group when we need support but we also turn around and give support when it is needed.
This leads to another topic in this thread, religion/spiritual beliefs. Just as we come from a range of medical situations and surgical outcomes we also come from a range of religious, political, socio-economic and cultural backgrounds. So again it is the norm of this forum to be open minded, appreciative, accepting and respectful of this diversity because it is truly what makes this forum so unique and beautiful. Hopefully we don't have to agree and or understand every persons belief system in order to be appreciative, understanding and compassionate. Sometimes it is hard to separate out one's religious/spiritual beliefs from discussions which share at such a deep level and so we are called to be open and non judge-mental. In the four years I have been involved with the group we seem to be able to do that and to find some common ground.
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Post by bethann on May 12, 2008 15:34:58 GMT -6
Matt,
Well said!
Beth
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Post by Ali-Brad on May 13, 2008 10:05:00 GMT -6
Matt,
I agree with your words and you have a good way of expressing yourself on paper/screen. My words may not have come across in how I would have discussed the topic in person, but I just felt uncomfortable watching the video. I agree that everyone is different. I suppose I'm just happier with people keeping religious/spiritual beliefs more low-key and personal.
Alison
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