A Theory On Walking Again

[went]

drummer904 said:

Wow Ryan, seems like your symptoms came on kind of quick compared to others' ...mine sure was alot longer than 6 weeks, but i guess that just means my recovery will be longer than most! I gotta say i love your attitude about getting out of that chair, thats just how its gotta be.

I wish I knew a way to speed things up. I took b-6 vitamins for a while then just took multi-vitamins. And i have so much tone and spasms in my legs that i cant tell what i can or cant move most of the time. oh, and HYPERSENSITIVITY. it sucks. Its really cool that your bladder problems are gettting better, im happy for ya.

Take care my friend

-El

Yeah, it blew, ha. I would assume that your symptoms coming on slowly (and hopefully not getting as bad as mine were) will greatly work to your advantage. A better starting point, you know?

I've said since the begining, I was either going to get out the chair or die trying.

I've started taking a B-12 vitamin everyday, and it seems to help with my nerves. Maybe it's just me, but look into it if you'd like.

[chickiet]

Ryan - I just read your story - "wow" is all I can say.

I wish I had some words of advice - but I'm not good at that, and my deficits are nothing compared to yours. But I do think you're doing the right things with continued exercise and a positive attitude to overcome the wheelchair.

Please know that we're all pulling for you!
Chris

[went]

chickiet said:

Ryan - I just read your story - "wow" is all I can say.

I wish I had some words of advice - but I'm not good at that, and my deficits are nothing compared to yours. But I do think you're doing the right things with continued exercise and a positive attitude to overcome the wheelchair.

Please know that we're all pulling for you!
Chris

Thanks. I appreciate it.

Someday, if it's ever all over, I hope I can embelish it a little. Maybe add a knife fight in a bar, versus a deranged hooker. Yeah, I like the sounds of that.

[WhiteAngel]

hi went, thanks for that very entertaining story, well I should say, you have a great sense of humor & unique way of expressing yourself, thank you.....i wish I had a little of your talent...I'm glad you have made such great progress, I have no doubt you will continue to progress even if its slower than you would like. remember!..slower is better than not at all.... ;D

you stroke a core with me when you said "I work towards getting better, because I have to get better. Living the rest of my life in a wheelchair is not an option. It just isn't.I'm too stubborn to accept that, I won't accept that".

I'm kind of in the same boat in a way, I'm pretty stubborn myself & have managed to keep out of that wheel chair for now, but this last year has been really hard, unfortunately I have to give in sooner or later....like you, I don't want to accept it & I won't....but I'm going to have to learn to cope with that idea...my family tell me all the time..."that I need to accept it"...but how can you? they just don't get it!......in my case I'll be going from what we call "walking not" to not walking then slowly ending up a quad...which the thought of is driving me nuts...anyway keep the spirit...if you like you can look at my story...it's very long...go to my blog which is new or my website or on the story page...I've got to learn how to write with humor...thanks whiteangel.freeblogit.com/

[went]

whiteangel said:

hi went, thanks for that very entertaining story, well I should say, you have a great sense of humor & unique way of expressing yourself, thank you.....i wish I had a little of your talent...I'm glad you have made such great progress, I have no doubt you will continue to progress even if its slower than you would like. remember!..slower is better than not at all.... ;D

you stroke a core with me when you said "I work towards getting better, because I have to get better. Living the rest of my life in a wheelchair is not an option. It just isn't.I'm too stubborn to accept that, I won't accept that".

I'm kind of in the same boat in a way, I'm pretty stubborn myself & have managed to keep out of that wheel chair for now, but this last year has been really hard, unfortunately I have to give in sooner or later....like you, I don't want to accept it & I won't....but I'm going to have to learn to cope with that idea...my family tell me all the time..."that I need to accept it"...but how can you? they just don't get it!......in my case I'll be going from what we call "walking not" to not walking then slowly ending up a quad...which the thought of is driving me nuts...anyway keep the spirit...if you like you can look at my story...it's very long...go to my blog which is new or my website or on the story page...I've got to learn how to write with humor...thanks whiteangel.freeblogit.com/

I wish I had an 1/8 of your courage.

I don't even know you and now I'm never going to be able to hear Yael Naim without thinking about you.

[Joel]

Hey, I happen to have real affection for "thingy". Leave it in. Also, get real, Went, that snake-charmer idea just can't work! I mean, who wants to levitate in place all day? Maybe this guy knows some magic-carpet makers--then we'd be talkin'! I could just hop on one of those thingys and get outa there!
Joel

[cindylee]

Ryan!!! I wondered how you were. It's great to see you posting again. And I think you are making a lot of progress. We live in a fast world so we expect everything else to be fast. But slow and steady sometimes is the better way. Keep posting, I have missed you! Cindy

[WhiteAngel]

I wish I had an 1/8 of your courage.

I don't even know you and now I'm never going to be able to hear Yael Naim without thinking about you.[/quote]

Hey went that's a sweet thing to say...it's a cool song...but I still think about the mac airbook commercial...I wish i had an 1/8 of your humor....so now we are even...

[ScrapHeap]

I lost my link to the old forum, password,etc. Admin was kind enough to email me a link to this new forum. Good to be back and good to see some of the previous forum members here.

1) Went: My story is so similar to yours it is uncanny. Main difference being my symptoms were over a long period of time - Years, maybe 4 or more. We share most of the same journey, stubbornness, commitment to improve, and obstacles of progress.

2) Went: You can not and did not embarrass yourself for stating your experiences and feelings about them. I've said and done far worse, in public and private places. One "thing" is for sure, most everyone had and/or has a "thingie." However, I'm with you. I'd never call it that. I have much more descriptive terms as a preference.

3) My theory on walking. Nike Baby! Just do it. However and whatever it takes. When devices are required, suck it up, swallow the pride, potential embarrassment, and JUST DO IT! I feel fortunate to be "walking" again. If that's what you want to call it. I walk with a cane. Badly I might add. I walk worse without it. I closely resemble a staggering drunk falling off the proverbial bar stool. I fall sometimes. Falls have caused me more setbacks than I care to endure. But I pick my sorry arse off the floor, take inventory of body parts remaining along with their damage status, and keep on gimping along.

4) Don't give up. EVER! Get mad. Get po'ed at whatever/whomever. Vent. But try to redirect that energy into a focused beam of rehab rituals.

Sorry if I come off as some steroid stuffed gym coach. I too have a lot of internal turmoil as a result of my situation. But I keep looking back at where I was just before and just after surgery. I have a LONG way to go before I consider myself a modern marvel (though the docs say I'm "not human"). But I've come a very long way from those places. That applies to both physical and mental aspects. And so what if Went, I, and others are more than a bit on the reclusive side. Look at the bright side. We don't have to subject ourselves to as much of the pettiness most others wallow in on a day to day basis. "I am going to be late for the show. I'm stuck in traffic. My Blackberry just glitched and I can't get my email until I get home." Yeah! Whatever. A week in our shoes and they'd be begging to be back in those "horrible" day-to-day situations again.

[Joel]

Hey Scrappy:
Welcome back! I love it. Missed ya. Go kick somebody.
Joel