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Post by peaceandlove on Nov 18, 2015 8:30:10 GMT -6
To Mr. Billan,
I want just to advise you about the doctor who neglect your case and didn't consult you by himself for the electrode placement areas which is essential, you better state his name online, so the patients can be carefull before visiting him. He should do his job properly or else everybody should know that they should not visit such doctors. It is your quality of life, if he could consult you properly it may work. Spinal cord resected tumor patients like us need special care, since it is not a matter of pain in ankle or knew... It is a major pain all over the body below tumor and disturbing neuropathic pain which have no similar.
Billan please inform us where the nurse put the electrode, on which area of your body. If the pain is all over the leg, where to put the electrode, then what if it is in hips too...... and other and else. many area in our bodies we are suffering. How to treat us. I believe that a case like you or me or any similar, need to be treated as a project and a team should be following.
Please advise Mr. Billan. Thanks In advance.
Peace and love
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Post by billanschell on Nov 18, 2015 12:02:37 GMT -6
Hi, peaceandlove:
The provider I saw is the only one in Washington state. The nurse wanted to put the electrodes immediately above the pain area, which, as you said, is not as clear cut for us as for other patients with neuropathic pain. Because I had read Gary Gleason's post, I asked them to place the electrodes around my incision site. Their solution was to place electrodes in several different areas -- above four pain sites and around the incision. Still didn't work...
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Post by peaceandlove on Nov 24, 2015 1:56:07 GMT -6
Good morning Colleague, I just see today on youtube a one hour sound with certain beat which is stating is healing all kind of nerves pain. Please give me your feedback. Does any body get benefit?? or have experience. It deserve a trial... Thans The link is as follow : www.youtube.com/watch?v=PtwoliW4P0o
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Post by peaceandlove on Nov 28, 2015 5:59:47 GMT -6
Dear Sirs & Mams... I found something today on youtube and google called Quell. It is for nerves pain. After watching youtube I understand that it will take around 2 weeks to start reducing pain. It is working electrically and operated by mobile application. It is available on amazon.com for 249 $ and if not working for you many back guaranteed. I hope that someone on this forum can avoid it and give us feedback how it work for us. I hope the below link I will post can be helpful for someone who will himself help us back by his feedback. I hope my email will bring smile and hope too your day as this Quell make me same ; I am living in Qatar and not available, and for you people in the USA I believe easy to get. Please check the below links : www.quellrelief.com/chronic-painwww.youtube.com/results?search_query=quell%E2%84%A2+wearable+pain+relief+technologyPlease feedback... Peace and love to all... Best Regards
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Post by peaceandlove on Dec 20, 2015 3:21:34 GMT -6
Good Morning gentleman's I just read on google about DBS : deep brain stimulator.. I don't know if someone try it, if it works for our case, if it is having good or bad outcomes but it deserves a look.. please advise if someone have experience in it... link as below www.youtube.com/watch?v=q7_7bwHmG4MPeace and love...
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Post by peaceandlove on Mar 1, 2016 7:52:19 GMT -6
Hello survivors,
Even the creator (Gary) of this post is fake as I believe, but we can get benefit from this if it helps. I change this post to record for the future patients, so dears if anybody knows about the TENS devise, please mention it here. I read online that there is device called TENS which can be bought from pharmacies and price between 10 to 200 Euros. As far as I know this is surgically installed as someone post on this forum as I remember before. I just know only now about it that it can be installed manually without surgery on the skin. If someone try it please advise. I feel this will not help, but someone advise that it help him a lot.
Feedback if please...
Good day/Peace and love..
thanks
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Post by peaceandlove on Mar 12, 2016 6:52:07 GMT -6
Hello survivors,
I hope you are doing well. I just discovered something called " perispinal etanercept " it is an injection & it works like magic as described and as I can see posted video about it on youtube. Does any have experience with this. Is it helpful.?? Is it good. Did any try it.?? Please advise, I will keep updates on this threat about any thing I see online which is helping releasing pain. It can be fake nothing is sure these days. If anybody try advise us please.
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Post by peaceandlove on Jan 4, 2017 1:59:27 GMT -6
Hello survivors,
I just see online a KKT treatment for back pain. I don't know how effective is this treatment, basically it is for scoliosis & spine radiating pain, the creator Mr. Khan say that it works by Quantum acoustic waves which is weird to me a little bit. However if anybody try it or heard about it in anyway, if it is helpful for us people, please share your experience here with us.
Thanks
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Post by funnywalk on Feb 1, 2017 15:44:02 GMT -6
Hi peace, Can report to you that TENS machines do not work for me, they are really more for muscles than nerves. They create a feeling which is itself neuropathic pain, so just add to the pain already there.
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Post by peaceandlove on Feb 6, 2017 7:11:29 GMT -6
Dear Funnywalk,
Very big thanks for sharing your experience. Very helpful. Your a very good person. I want to say that KKT is for bone too as informed to me by their center, so not helpful for us too.
My doctor advise me for spinal cord stimulator, They say it don't work for all 100%, but 75% only. When it work, it is like miracle, the pain will disappear. Does any one have experience about it - Spinal cord stimulator..
Thanks
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