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Post by samuridude on Jan 26, 2015 11:47:23 GMT -6
Hello peaceandlove
My symptoms came and went for the last 30 years before I was diagnosed and had surgery. When I was diagnosed, I had no choice but to have surgery. We are all wired differently and have different tolerances to pain. I don't believe anyone can look back in time and say, I would of done this, or I would of done that. We really don't know what we should of done until we have done it. Roll the dice as you may, hope and prey it works out for the best.
-Good health
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Post by peaceandlove on Feb 1, 2015 0:57:30 GMT -6
Samuridude
Thanks for your statement. My surgery is scheduled to be done on 11 of Feb. My Neurosurgeon is Dr. Ibrahim Saikali. You can check his videos on Youtube by his name/Ependymoma.. His self confidence supported me to go thru and he have done same surgery for a friend and it work. I hope it will work. Everybody is different.
Dear Members, your prayers for me on 11 February 2015 is appreciated. I believe your prayer is listened by God since you people are blessed.
Body pain make your sault clean. Clean Sault, blessed people.
Thank you
Thanks
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Post by funnywalk on Feb 5, 2015 17:54:56 GMT -6
Samuridude, you will be in my thoughts on 11th. In a situation where none of us, including the professionals, know all the factors, the only way we can empower ourselves is to live the life we are given as fully as we can, and that includes making the choice to have or not have surgery. In my case, I do not know how long I had my SCT before it began to affect my walk - and that was the symptom that sent me to the GP. Losing my balance and slight backache I put down to the onset of age. My NS looked at my MRI and said the tumour was large and the spinal cord was very compressed. He recommended surgery as quickly as possible, although he stressed the decision was mine to make. I knew the tumour was growing because my walk was getting more and more odd and I began to feel tired all the time. The surgery meant a precise diagnosis and biopsies which put me more in the picture, even though the tumour was not removable. If it had been, I would have been paraplegic. I trusted my NS not to do anything to risk what I already had, and he said the tumour had woven itself into my cord and there were no edges. It had made itself at home. My cord was swollen and compressed, but thanks to the laminectomy, that compression has eased a lot and I no longer get backache. Radiotherapy MAY have exacerbated the neuropathy in my foot and leg, but it has also halted the growth in the tumour since 2012. I am grateful for being able to walk, swim and be continent, and to still be the same person I was before the operation. I hope this helps anyone thinking about surgery, or about to have it. Blessings on you all, FW.
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Post by peaceandlove on Feb 23, 2015 5:31:41 GMT -6
hello to all,
my surgery is done on 11 of this month. it was done with neuromonitoring. my head an legs was connected to cables to monitor the nerves.the tumor is resected 95%. until the neuromonitoring device start warning.when i wake up.i could move my legs.next day i walk by myself but barely.today i move alone much better. third day post surgery, i urinate without complication at all. am at home now, like all others i am disturbed by numbness in left leg, weird sensation in legs. ...you can say like hyperbend or something squeezing my leg.....it come and go. the thing wich disturb me to maximum is the low back pain, why it is still there? i ask my surgeon about it if it is related to the 5 percent left from my tumor, and he say i dont think. he say it is astrocytoma and i resect it all must all.the pressure should go. you need time to heal. i am personely confused. i was bieleving that the low back pain should be directly released post surgery. it shouldnt take time. i am still having same feeling, when i sit for more then 10 minute low back pain start disturbing me. please people friends.. can you advise me.any similar case. thanks
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