Neurofibromatosis Type 2

[gordy1]

Hi,

Can anyone point me in the right direction to find out more about Neurofibromatosis Type 2? A friend's teenage son has just been diagnosed, and I've offered to help find out some facts (as opposed to some of the fiction on the 'net!), given my son's experience with SCTs.

The Children's Tumour Foundation keeps coming up in my searches, but either their server is down, or it hasn't been active for some years (www.tcf.com). If anyone else can access that site, please let me know.

Thanks!

[lw]

Hi Gordy,

Every time I type in that website I keep getting an industrial fan company come up! On a serious note www.nfauk.org is a good site for NF2 - there's case studies, information on symptoms and treatments and fact sheets that can be printed off. I'd say it's a good source of info and probably the most in-depth I've come across.

Leah

[gordy1]

Hi Leah,

Whoops, dyslexia (and stupidity) on my part...the website I should have referred to is www.ctf.org.

But many thanks for the website you've mentioned...that didn't come up in my search, and looks very informative.

Cheers,
Gordon

[gordy1]

www.ctf.org is working today...strange!