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Post by fatfattyfatpants on Apr 21, 2014 22:11:19 GMT -6
I've been having back pain for several months and finally went to a doctor this afternoon. After an exam and x-rays the doctor told me everything looked fine but he saw some inflammation, gave me some pain killers and sent me on my way. Several hours later, he called me to tell me a radiologist had looked at my x-rays and seen a lesion/mass on my spine. I was completely stunned and so I know I did a terrible job asking questions. He's referring me for a cat scan to get a better idea of the prognosis and he asked me to stop in his office tomorrow to pick up hard copies of the information and a disc of my x-rays but beyond that I'm just so clueless and scared. And the more I read, the scarier it gets. Can anyone tell me a good resource for information (besides this one) on what I should expect or know or what the heck happens now? What does this all mean? What do I do? I feel lucky to have found this site because while what I'd really like is a hug, what I really need is you guys! --Jess
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Post by samuridude on Apr 22, 2014 8:52:11 GMT -6
I would have someone else take a look at your x-rays like a Neurologist. The other, is to get a MRI with contrast. I know it's extremely difficult but try not to worry until you know what the real problem is.
-Good Health
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Post by funnywalk on Apr 22, 2014 15:11:43 GMT -6
Hi there FFFFpants! Consider yourself virtually hugged. We all have the same thing, more or less, and we all go through that awful post diagnosis uncertainty and some of us have operations and we go on. Your body is amazing and can adapt to so much. Try not to google all the nightmare stories. Wait till you have something definite from your doctor, then come back to us and let us know how you're doing. Meanwhile, I am thinking of you and sending love. FW
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Post by pringleman on Apr 23, 2014 1:39:56 GMT -6
Hi there! I second the notion of getting an MRI. They are expensive but they are the only real way to see what is going on.
There is a good book on spinal tumours that you can buy off Amazon for Intramedullary Spinal Tumours by Georges Fischer and Jacques Brotchi. Intramedullary turmours, as I understand it, are the ones actually inside the spinal tumour. It is an expensive book.
This site is a good source of information as is the CERN site if you have an Ependymoma.
Remember that you can come through this.
Hugs,
PG
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