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Post by karen on Jun 7, 2014 9:51:15 GMT -6
Just to add my two cents. . . I saw a radiation oncologist who assured me there is no evidence to suggest ependymomas have a genetic link. Not to say there are not links between all sorts of other types of cancer, but there has not been research to find ependymomas are inherited. I do not know of anyone else in my family having any sort of central nervous systems tumors or cancer. . .
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Post by funnywalk on Jun 10, 2014 5:45:25 GMT -6
There is some research being done in the UK about a DNA component in astrocytoma. Not sure if you can participate if you live overseas, it just involves one blood test. Their results should be interesting. I've volunteered but the hospital said they did have the resources to follow it up. Which is a pity, as this is such a rare and wonderful thing.... oh well.
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Post by paamulbig on Jun 14, 2014 21:10:32 GMT -6
I am a 72 year old male with a tumor at t-11 t12. My 49 year old daughter just had an MRI and was found to have a tumor. Dr was very surprised. In his years of experience he has not seen or heard of this.
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Post by paamulbig on Jun 14, 2014 21:13:11 GMT -6
Should have said her spinal tumor is higher in the spine. Mine was supposedly impossible to remove.
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Post by jean on Jun 24, 2014 17:11:48 GMT -6
Just read this thread. I am BRCA2 also, and had ependymoma L3 3 years ago. I wondered about a relationship at that time, but didn't find anything in my research at that time. Is there anything new?
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Post by Jenny from PA on Jul 15, 2014 19:10:43 GMT -6
I went to see a geneticist and didn't get anywhere. I have had multiple tumors (four of them being nerve sheath tumors) but all where slightly different in pathology. I had one uncle with a brain tumor but that is all I am aware of. The geneticist basically told me to touch base with them in a few years or after I have another tumor or two removed. I will not be going back. The only doctor that tried to make a correlation was my endocrinologist because she thought my thyroid cancer and the tumors have to be linked somehow. I guess I was exposed to something out on our horse farm that no one else picked up but me. The only other thing I can think of to blame for my condition is the fact that my father was in Vietnam and exposed to agent orange and possibly passed something on to me. More studies have to be done. Hope to God my kids don't follow in my footsteps.
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Post by samuridude on Jul 16, 2014 7:19:36 GMT -6
That's interesting because my uncle who has a brain tumor was exposed to agent orange in the Vietnam War.
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Post by Emma on Jul 16, 2014 21:00:40 GMT -6
At least for cavernous malformation there is a genetic factor (in some of the people). I'm still waiting to get tested for the specific genes involved, the insurance and the hospital apparently didn't come to an agreement on this yet
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Post by saraandmark on Sept 28, 2014 10:35:33 GMT -6
My husband has spinal cord astrocytoma that has now metastisized throughout his spinal cord and head. His brother died of a glioblastoma. The lived near an apricot orchard until they were teenagers and there did seem to be too many people in that area with brain tumors but it was 25 years ago and I don't see any way to research that.
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Post by kurtymac on Dec 7, 2014 17:47:27 GMT -6
I know my father always had back pain, but didn't have any notable reasons for it. I also have done a lot of back packing and rucking in the Army so that is a possibility. My only argument to that is my spine doctor who is an Army doctor has not seen this with his 20 years of experience. Especially since we are in a Infantry Division all we do is ruck. Other things that I think could have possibly contributed to mine is I took Accutane when I was younger I heard that stuff is bad news.
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