spinal scwarnomas

[ardnoz40]

I began to have severe back pain in 09. It became unbearable in 2011. I went to spinal specialist as well as other doctors. 8 doctors before I found out what was wrong. I went through several painful injections and epidural blocks. I left in more pain then when I came in. I felt like I was being electricuted all day with a burning sensation. I lost 83 pounds and ended up in a wheel chair. I was labeled as an addict,being crazy, and not being truthful. 3 doctors dismissed me. I had around 15 MRI's, numerous x-rays and CT scans. I ended up losing my home that I purchased when I was 22and had 11years it would have been paid for. Finally the 8th doctor found out I had not 1 but 2 tumors.

[Leofwen]

Hi there

You poor thing; sounds like you have had a terrible journey. The problem with schwannomas is that we are all different and they do not conform to a textbook! . My NS thinks I'm an enigma as mine has not changed in 2 years but over last 6 months have severe symptoms. I am pretty balanced and sensible and hardly go to my GP, but I do know I am in debilitating pain. I have gabapentin and morphine as my docs are really good, they just can't understand symptoms as they are not experiencing them!

I hope you get treated and find an NS who understands and respects your symptoms

S x