Just wanted to send an encouraging word to all those dealing with spinal meningiomas. We are a rare breed. I had my large, heavily calcified, severely compressing my spinal cord TUMOR removed three weeks ago. Will share that the first few days after surgery were painful even with the pain meds. Came home after a week and have improved considerably since then. Walked on my own after a week and a half. I was very proactive pre surgery getting my digestive system prepared by taking acidophilus so never had bowel issues. Was able to shower myself at two weeks. I had issues with my left leg, left hand and with dizziness pre surgery. The deficits are still there but not as prominent as before with the constant electric pulsations that went with them. Overall I am extremely pleased and thrilled to have had my meningioma removed. Surgery and stitching took about 10 hours so that also figures into recuperation. God has been merciful and gracious!
Large calcified intradural extramedullary meningioma in c1-c2 extending up into the foramen magnum. 9-10 hour surgery on January 15. Almost total resection.
We are a rare bunch? I am 57. I had a large menginomia removed from my cervical region. I was experiencing plenty of issues. I blamed them on a broken ankle and the surger I needed later. The symptom kept getting worse. I lost the use and feeling in my right leg. I was also starting to lose feeling in the left leg. Both legs were cold. I was on crutches for two years and I am overweight. It was difficult. I was sent to a neuro that gave me a death sentence of pain and loss of mobility. I thank him for that. He made me mad. I'm a fighter. My wonderful GP doctor sent me to the one he sent his wife to. At that appointment that wonderful neurologist found the tumor he also found a mass in my thyroid. That day I was sent to the hospital had MRI after MRI, scan after scan. Surgery was done on Monday in Jan. 2014. I was walking on Tuesday! I was using a walker, but I has feeling in both legs. They were not cold. I did not have foot drop. Pain was OK as long as I took my meds like I was told. After surgery my right shoulder and arm was extremely sore. Still is. Today it has been 9 months since surgery. I have also been told that basically my upper and lower back are a mess. I do daily stretches to keep them moving. I walk a lot. I'm planning on doing a 1mile fun run in October with my grand kids. When I' m tired my " funny" walk comes out. I had my thyroid removed because of cancer. It was caught early. I struggle with all of this happening over a two year period. Part is from thyroid meds, part is from legs still not strong. My life is not what it used to be, but it hasn't been a year yet and my grand kids are helping me train! You have to stay strong and focus on the positive. Celebrate the small things. The first time you step up a step or curb withou help celebrate it. The first walk, steps celebrate it! Otis the only way to get through this. Best of luck to all