New symptom...

femmyreyn
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Posts: 64

New symptom... Oct 31, 2011 11:22:12 GMT -6

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Post by femmyreyn on Oct 31, 2011 11:22:12 GMT -6

Surgery is 16 days away and I have had a new symptom the past few days.
History For several months now my right side has been weak with numbness and pain. My left foot has had a little numbness for a bit too. Lesion/tumor in C5 with damage and swelling above and below.
Now I have this sensation in my left pelvis/thigh of heat flowing downward. It's like someone is pouring warm to hot water into my thigh from my pelvic area.
Any ideas? Anyone else have this? I will call my NS office but I typically don't get a call back for a day. My PCP doesn't have a clue about this stuff.

Last Edit: Oct 31, 2011 11:22:39 GMT -6 by femmyreyn

C4-C6 Spinal cord biopsy Nov. 16, 2011. Another coming up soon as the first was inconclusive and all the poking and proding since has found no clues. Likely an astrocytoma.

jasonm
Leader

Posts: 106

New symptom... Oct 31, 2011 18:47:38 GMT -6

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Post by jasonm on Oct 31, 2011 18:47:38 GMT -6

Hi, not sure what type of tumor you have, but this new sensation in your leg is just another crazy nerve sensation and probably nothing to worry about at this point. you are so close to surgery. Doctors might ask you if you have any new weakness, big changes in bowel or bladder, and severe pain in your neck/upper back or shoulders. These symptoms might be more dire. you are very close to surgery.

Intramedullary Ependy -C-4 to C-5, syrinx in T-spine. Tumor hemorrhaged a week before surgery on 12/22/09. Surgeons: Allan Belzberg and George Jallo

Todd Leader Walking the Mile Posts: 1,010	New symptom... Oct 31, 2011 22:56:53 GMT -6 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Todd on Oct 31, 2011 22:56:53 GMT -6 nerve pain. I get this as well. it comes and goes in my arms, thighs, and hands.
	Ependymoma C7; Complete resection March 4, 2009; Lamenectomy/Plating C5 - T1 Sites: gratehouse.net/redviper/?page_id=50 blogs.activelearningnetwork.com/gratehouse ---------------------------------- Keep in mind, I am not a doctor. The information I share is from the research I have done and from talking to my own docs. If I am out of line in your opinion, message me, but be curteou

femmyreyn Leader Posts: 64	New symptom... Nov 2, 2011 22:29:14 GMT -6 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by femmyreyn on Nov 2, 2011 22:29:14 GMT -6 Whew. Thanks guys! I feel much better knowing I am not alone.
	C4-C6 Spinal cord biopsy Nov. 16, 2011. Another coming up soon as the first was inconclusive and all the poking and proding since has found no clues. Likely an astrocytoma.

stevieray Leader Posts: 226	New symptom... Jan 9, 2012 22:31:37 GMT -6 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by stevieray on Jan 9, 2012 22:31:37 GMT -6 I had worsening bladder problems before my surgery and they increased my prednisone to reduce inflammation until surgery. It helped.
	Myxopapillary Ependymoma T12-L2 July17, 2000 Dr Barba at UCSD

Post by femmyreyn on Oct 31, 2011 11:22:12 GMT -6

Post by jasonm on Oct 31, 2011 18:47:38 GMT -6

Post by Todd on Oct 31, 2011 22:56:53 GMT -6

Post by femmyreyn on Nov 2, 2011 22:29:14 GMT -6

Post by stevieray on Jan 9, 2012 22:31:37 GMT -6

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