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Post by lavender on Feb 9, 2011 22:16:57 GMT -6
Hi all,
Does anyone have/had a tumor at c7-t1? Mine was initially diagnosed at c6-c7, but seems like the final report is at c7/t1.
From the research I've done, I've read that c7/t1 has a higher rate of mortality associated with surgery so that really scares me.
Has anyone had that location?
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Post by Linda51 on Feb 9, 2011 22:56:42 GMT -6
Lavender, don't believe everything you read. My tumor went higher up C2-T2, I am still here and working close to my 17th year. Not to many died from these tumors unless it a high grade malignant. Hang in there and keep your chin up!!!!!!!!!!!!!!
~Linda
PS: Let me add anything is possible when you go into surgery but with a good experience NS out there usually outcomes from the surgery are much better than 5 to 10 years ago. Prepare yourself for the worst but hope for the best. Anytime you have any kind of surgery there is a risk. But there is a risk everytime you get into your car, but most of the time we never think of that.
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Post by jasonohio on Feb 10, 2011 17:24:32 GMT -6
Mine was initially described as c4-c7 but the final report was c4-c6. I'm still here too
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Post by Todd on Feb 10, 2011 23:09:37 GMT -6
mine was at C7, laminectomy from C5 - T1. I don't think "mortality" in that research is talking about living. seems like I remember a thread where someone said that it means something related to the tumor and not life expectancy.
other than living with some pain and numbness, I am doing well. I think you only have to be concerned if the tumor pathology comes back as a level 4, which is crazy rare.
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Post by hmal on Feb 14, 2011 18:50:43 GMT -6
Mine was in that area as well. Alough recovery for me was awful for about 6weeks, I'm over 4 months out with muscle pAin and hand numbness. Considering how I felt after surgery, I'll take it!
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Post by John on Feb 14, 2011 22:46:14 GMT -6
Mine was c5 to t2
Years 1 and 2 were very hard. By year 3 things started to improve
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Post by lavender on Feb 14, 2011 23:46:31 GMT -6
Thanks Linda, I am trying!
Hmal and John, since yours is also in a similar location to mine, do you have "head forward posture" since they are entering at the level where your muscles are to hold your head up? Hmal, overall it seems that you've had a pretty good recovery. Are those your only post operative symptoms? Muscle pain isn't fun, do you control it with medication?
John, what were your pre & post symptoms? Anything specific you would all to that location? I worry that since it is the prime location of muscles and holding your head/ neck up, it would be very hard.
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Post by paul55 on Feb 15, 2011 7:12:59 GMT -6
My full laminectomy was C5-T2. I haven't experienced any issues with my neck or head. I do occasionally have pain in the surgical area, and it feels funny to touch, but all the other issues are more troublesome than this.
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Post by Todd on Feb 15, 2011 21:15:31 GMT -6
I have head forward posture. pretty bad. due to surgery. it's actually the single biggest struggle I have and I was left numb from the chest down on the left side of my body. I can live fairly well with the numbness but the head forward posture is a real pain.
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Post by trobert on Feb 16, 2011 0:59:22 GMT -6
lavender From what I read the risk of someone in your condition being paralyzed is less than one percent, and the risk of death is even less than that. I agree that the term "mortality" as used in medical texts does not seem to mean what we laypersons think it does. @todd I was just curious as to how numb you are on a percentage scale. I have numbness from the neck down as well, but it is only 5-10 percent with the exception of my hands. Are there any special exercises you are doing to strengthen your neck? Have the neck problems been improving over time?
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