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Post by kansasmom on Dec 13, 2011 6:49:41 GMT -6
M1, so great to hear your progress. Well done on all your hard work. I remember your posts here pre-surgery and I'm happy for you that things are working out.
How are your pain levels compared to pre-surgery?
Crowning, how is your husband doing now? Did you get a new GP for him? Are things looking any brighter? Do you have any good friends or family to support you during this?
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Post by crowning on Dec 21, 2011 3:32:11 GMT -6
Merry Christmas to all, and thank-you all for caring, and advice. My husband and I went to see a lawyer on advice from a very nice advocate from the BC Paraplegic Association. We told her our story and she said although dispicable, my husband is not getting any medical care because the Doctors and Specialists do not want to get dragged into a possible lawsuit so they would rather make up excuses not to see him or write false letters making us the culprits so they can deny seeing us again. I thought I was going crazy, not knowing why my husband was not getting any help. Since he was paralyzed last Oct. 2010, he has not been touched or assessed since he was discharged from rehab. To date we still do not know what sort of damage was done to his spinal cord. The lawyer said we needed help, we could not do it on our own, but we needed a lawyer that specializes in medical malpractice. She said they will then get my husband the proper medical care he so deserves. I have contacted a few lawyers, but of course it comes down to expert neurosurgeons reports, which we would have to pay for, and whether these neurosurgeons would have preformed the surgery differently. I am looking for a fellow on this forum who told me his surgeon warned him before surgery, that if the MEPS were lost he would stop the surgery to preserve his functions. I wonder if I could get his surgeons name. I wish my husbands surgeon would had stopped the surgery. In a nutshell, if only my husband was treated with care after this happened to him, things might be different today. I wonder what happened to empathy in todays world, is it a thing of the past. My husband went to see a new Doctor, who told him he was lucky to be alive at the age of 52, as he had lost a daughter in a vehicle accident when she was 18. He said if his other Doctor did not have time for him, he certainly did not. He also stated he was a friend of his other Doctor. Another lost cause. So its seems, and the lawyer agreed, we have to go outside of our community to get a new Doctor. On a brighter note, we are trying to get a stand-up wheelchair so my husband can go back to work as a automotive technician, this is what he loves to do, and he is happiest when he works. He is still trying to deal with his pain, but he is an amazing man. He rarely complains, and just keeps on going. He still has hope for more recovery, and he is determined and works hard at it. I hope and pray that his wishes come true. He is to me, and everyone who knows him, a compassionate and caring man, who would do anything to help another person. Hopefully we will find a Doctor just like him.
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Post by kansasmom on Dec 21, 2011 14:23:54 GMT -6
Crowning, my Christmas wish for you is that you will find a compassionate doctor who is a lot like your husband, just like you wish for. I also hope you manage to get him the standing wheelchair soon.
It's bad enough that surgery might have gone differently and been better for your husband - as the lawyer said, you will need an expert to assess that situation - I think it's even worse that you have been left without help since then.
Do keep us updated. I'll be waiting.
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Post by schristi on Dec 24, 2011 0:11:55 GMT -6
Please tell your husband to stay focused. I was operated on for an ependymoma (T6) on September 1, 2010. Could not stand on my own much less walk but after immediate (which he needs to get) and intense continued therapy (I am still doing therapy) I am now walking with a cane and continue to work towards walking without assistance. One of my biggest hurdles recently is depression due to my lack of being able to drive. I know Jesus will help me get past this, it just gets hard sometimes as I am sure you both understand. However, we must stay strong and have faith. It will get better. Take care of each other emotionally , that is just as important.
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