HUSBAND just had ependymoma removed Nov 12, 2010 17:51:54 GMT -6
Post by crowning on Nov 12, 2010 17:51:54 GMT -6
On Oct.18th my husband walked into surgery to have a ependymoma removed from inside of the spinal cord t6-t7. The surgeon said he would be in hospital for 4 days at most and 2 months at home for recovery. When he awoke from surgery he was numb from the waist down but could wiggle big toes. He thought it was the anesthetic waiting to wear off. That evening he went into huge spasms for 2 hours of excruciating pain which the nurses could not control with drugs. They finally called in a pain doctor who gave him baclafen which calmed them down somewhat. He still has spasms which are controlled by baclafen. Anyways after a horrible uti infection was treated he is now at a rehab center awaiting therapy. The surgeons, specialists etc. cannot tell us how much function he will regain or how long it will take. At the rehab center they seem to be more focused on teaching my husband how to live independently in a wheelchair, then trying to start the therapy treatments to hopefully further his functional outcome. We have been through a nightmare the past month and we still don't know what the future holds for my husband now. He was a 50 year old active man , who worked everyday as a automotive mechanic up until his surgery. We were told that there was only a 3% chance he would be worse than he was before surgery. Pretty good odds we thought. Well, it has obviously not worked out the way we had hoped for, but we are still hopeful he will continue to recover. The loss of bladder and bowel function has been pretty devastating for my husband, fully understandable. He is slowly getting back some sensations inside his legs but still no feeling. He has tingling inside legs, can feel muscle contractions, can lift right leg and kick out from knee down, left side is weaker, and just recently said he could feel inside of left knee. I just pray he will continue to improve, and eventually walk again. He is determined and is working hard at it.One surgeon said he will never walk normally again but he felt he would eventually walk with a cane, but the old cliche is always added. We don't have a crystal ball. Anyways, this is the start of a long hard journey I think, for the both of us. Our lives will no longer be the same.