sandra
Junior Member
Posts: 18
|
Post by sandra on Jan 18, 2010 10:05:30 GMT -6
Hi - I have posted here but am following the advice I saw in another post in this section and also putting it in the general area. I also put it on the Facebook site.
I have yet to have surgery. I have a large meningioma in the spinal canal at L3,4,5, spreading to cover the sacrum and up into the lower lumbar area where it can be seen as a lump. It was discovered in May '09. There is 40% collapse and deterioration of L5, deterioration of sacrum & all S vertebrae, and broken tailbone.
Dura will have to be cut to resect tumor. Rods L1-L5 and into pelvis for stabilization. Risks and complications. MRIs to be done soon. On crutches and have a lot of pain and impaired sleep but not the kind of pain that makes me ready to take the surgical risks that were described. But then, how much pain does it take to make that leap is what I have begun to ask.
The pain is limiting. I can do more than in the summer and it is less than in the summer before an embolization was done but it is still very limiting. I would appreciate talking with someone who has been through this.
|
|
|
Post by mammer46 on Jan 24, 2010 11:55:39 GMT -6
my daughter had a 3 cm malignant meingioma removed 13 years ago in the same area. she just found out 1 month ago she has 3 more that have been there since 2006 yet the neuro's never told her. they have informed her that she will be paralyzed with another surgery. she refuses to have it done at this time since she has a daughter graduating h/s next year. my worry is it spreading , or paralysis anyway without surgery. have you done much research on this type tumor ?
a worried mom cindy
|
|
|
Post by sharonc on Jun 7, 2010 19:33:53 GMT -6
Hi to both posts, My daughter has had recurrent atypical meningiomas that do grow rapidly cervical spine, several surgeries and radiation. I would be happy to talk with you both.
|
|
|
Post by wanda on Apr 28, 2015 10:27:46 GMT -6
Hi to all my son has been diagnosed with malignant meningioma L2-L4 he has not had any surgery yet only radiation to the spine now they want to do whole body radiation. has anyone had this done as I can't find much info about the treatment. I'm going crazy with this need help bad.
|
|